I would love to tell you that all went well with Peyton’s clinic visit last week. I would also like to tell you that I have no idea what complete heart failure feels like. However, either statement would be a LIE! Unlike the poor readers on my personal blog, I won’t make YOU all wait…
Category Archives: Advocacy
How Grief Has Changed Me
Written by Chrissi Grief has changed the person I am, the woman that I am and continue to be. It has changed the dynamics of my life and my family’s life forever. We have broken hearts, however – we have made an honest attempt of overcoming and persevering. How have I changed personally? I believe…
Compassion
Written by Natalie Let’s be honest, the journey through the more complicated side of neurofibromatosis with our daughter Mandy has not been easy. There have been many days of uncertainty, of fear, of desperation, of anger. We have tried to find the blessings whenever we can. One of those blessings is being able to see…
Grief and Siblings
Written by Chrissi When a child passes away, the pain for all is so hard to comprehend, especially for a sibling. We, as parents, have our own grief and our own pain and we tend to not be aware of what our children, the siblings may be feeling. I know for our family that was…
Spreading The Love With My Wonderful Walls.com
Some people just like to spread love. Stephanie and her husband from My Wonderful Walls are two of those people. Creating individual works of art with their Kids Murals and Nursery Murals, this husband and wife team are growing their new business by planting seeds of love. Stephanie was so sweet to send Parker a…
The Awakening
I met Tracy when I moved to the neighborhood ten years ago. At the time, I had a lot going on. I was raising three boys, the oldest autistic, and was balancing their care with that of my mother, who was very ill. I was tired and emotionally drained. After Tracy and I talked for…
The Diagnosis
Written by Natalie: Every parent to a special needs child has that story. You know the one, the one we never wanted to have. The diagnosis story. As an introduction, I thought I would share ours. It was the first of many diagnosis stories to follow. So, how was my daughter Mandy diagnosed? The answer…
Say What?
Have you ever been sitting in an IEP meeting or some other school-related meeting when someone from the school staff says something so utterly ridiculous that you are left speechless? I read an article in a local newspaper yesterday on the subject of advocates assisting parents in the special education process. One of the advocates…
This, That and a Few Other Things
I don’t know about you, but the amount of recalls lately has me more than a little bit concerned. Uh, peanut butter anyone? If you scroll all the way down on this site you will see a list of current peanut butter recalls. The folks over at Parents.com must have been reading my mind. Their…
Try This Tuesday #29: Communicating with Teachers and Paraprofessionals
If you’d like to join in but aren’t sure what to write about, try the topic suggestion for this week: Communicating with Teachers and Paraprofessionals – how do you create and maintain a good relationship with your child’s team? What methods seem to work best for you? Our Communication Plan When my son was moving…