It’s really spooky. Sometimes when reading Sheri’s blog posts, I feel like she is inside my head and reading my thoughts. It is true that we both have adopted children who are diagnosed with FAS (Fetal Alcohol Syndrome), and perhaps that is the reason her words could be mine. This week’s interview is a bit…
Category Archives: Advocacy
When it rains, it pours
Nightmares have been a nightly occurrence for me these last few weeks. The message of the dream is always the same but the scenario changes each night. I’m always struggling in these nightmares; trying to climb slippery stairs to reach my kids or failing to save my toddler from a watery grave. If I’m not…
Special Edition This Just In: Sarah Palin
From The Dayton Daily News Governor Sarah Palin of Alaska has been selected as John McCain’s choice for Vice Presidential nominee of the Republican Party. Governor Sarah Palin recently gave birth to her son who has Down syndrome. The Palins knew before their son’s birth that he would have Down syndrome. Sarah and Todd Palin…
Top Ten Things I’ve Learned About Reflux…
10. Pediatricians often say that babies with reflux will “grow out of it” by age one. They’re lying. The pukes just get bigger and more colorful. 9. Parents who talk about how their baby “throws up all the time” really have no clue. If the clean-up process doesn’t involve a shower, at least two changes…
Please Don’t Leave
I’ve read posts by several bloggers recently on the subject of lost friends – people who leave your life once you have a child with disabilities. I’ve experienced that also, but it began before my dear Ashley ever joined my family. When I shared with my friends and family that I wanted to adopt a…
Take Two Minutes. Save 100 Lives.
If you could help save a child’s life with just a few clicks of your mouse and two minutes of your time , would you? Reece’s Rainbow is an organization that is very near and dear to my heart. The goal of Reece’s Rainbow is to save the lives of children with Down syndrome who…
This Just In: IEP Edition
In my recent post Learning to Make Sense of an IEP, I asked for everyone to share their favorite resources on the topic of advocacy and special education. Between this site, my own blog and some emails, I got a bunch of responses and wanted to compile them here for the benefit of all of…
Plays Well With Others
Yesterday Parker had the opportunity to play with a couple of friends, who along with their parents, stopped by for a quick visit. My heart soared as I watched Our Brave Hero butt hop over to join in the playing that was happening in our family room. Parker has decided that hanging out with friends…
Caring, Curing and Aiding Pediatric Research
Parenting children is not an easy job. Parenting children with special challenges adds more complications to the task. Parenting children with chronic or life threatening medical conditions is frightening. While we as parents need support and education, we must not forget the fact that our children do, too. Whether physically healthy, living with special challenges…
Pride In Association
There is a lot that I am proud of. My husband. My kids. My recent 44 pound (and still counting..sigh…..) weight loss. But today I am proud of so many of my friends who went out of their comfort zones to try and explain the hurt and damage caused by the use of the word…