See her? That mom over there? Why doesn’t she just… …Leave her baby in the nursery at church? …Give it a rest with the hand sanitizer? …Breastfeed? Or that one — right over there — why doesn’t she just… …Make her child behave? …Stay home? …Get a sitter? What about that one — why doesn’t…
Category Archives: Raising Awareness
Creature Discomforts
I love these ads that are running in the United Kingdom. I suggest you take a few minutes to explore the Creature Discomforts website, especially the information about the people behind the characters. The ads are based on the work of the creators of Wallace and Gromit, and the goal of the ads is to…
Seclusion, Restraint and the Public School System
From My File of Things That Make Me See Red: I’m the mother of a medically fragile child with special needs. This kid has spent many an hour circling the drain. As a matter of fact, I writing this post from his hospital room after a very unexpected surgery on Sunday. The bottom line is…
If Only I Could Make It Stop
Your day started off rough, didn’t it my sweet Ashley? Just like so many other days recently. Although you wake up with a smile on your face, it’s not long before a seizure steals the morning joy from you. I know you don’t understand the funny feelings in your head just before the seizure erupts….
Can’t Go There? Can’t Get In?
December has been my month of inaccessibility. Throughout my 12 years with Ashley and her wheelchair, we have often gone places that were not accessible. When Ashley was small, it wasn’t a huge issue – I could just pick her up and carry her over a curb or up a few steps. That is impossible…
This Just In: No More Medicaid Waiting Lists
Wanna make a difference with just the click of your mouse? Renee Beauregard, a mom, adocate, and small business has laid out a very important proposal over at change.org. Oh. You haven’t heard about change.org? Let me fill you in a bit: “Ideas for Change in America is a citizen-driven effort to identify and create…
Blogger Interview – Dream Mom
Dream Mom, the subject of today’s interview, describes herself as a midwest mom sharing and reflecting on the love for her Dear Son and the challenges of everyday life with a severly disabled teenager. Make sure after reading her interview, that you visit her blog, Dream Mom! I promise you will not be disappointed! Tell…
Close up and personal
When I first started blogging and went in search of sites written by other parents of children with Down Syndrome, one of the things I noticed was a distinct lack of photos. Maybe it was fear of strangers seeing their children, or maybe it was just a level of ignorance about how to upload pics,…
Would you save a life if you could?
When Peyton was diagnosed with Leukemia, one question that we were asked repeatedly was, “She needs a bone marrow transplant, right?” I would have to explain that bone marrow transplant is a last ditch effort, that you don’t do it unless nothing else works, you don’t WANT to do bone marrow transplant. There’s nothing easy,…
Interesting news item about DS
Down’s births rise despite tests More Down Syndrome babies are being born [in the UK] than before pre-natal screening became widespread, figures show. The UK saw 749 Down’s births in 2006, up from 717 in 1989 when tests came in. See: http://news.bbc.co.uk/1/hi/health/7741411.stm I think this gives us all a bit more hope in the world…