Sometimes I don’t know where to begin…or whether to begin at all. Ever been there? My brain freeze and total body paralysis occur when I begin to think about balancing the never-ending needs of four sons – three living with a variety of special needs which comprise a spectrum of behaviors and needs…mental as well…
Category Archives: Raising Awareness
Try This Tuesday #36: Helping A “New” Special Needs Parent
Welcome to another Try This Tuesday. For details on how to participate, please check out the welcome post. If you’d like to join in but aren’t sure what to write about, try the topic suggestion for this week: Helping a “New” Special Needs Parent. What would you say to someone who has just learned that…
Making a Difference
Have you experienced problems with a business or company that discourages shoppers with disabilities? Have you felt unwelcome when walking through the door of a store where the associates look down on you or your child with a disability? Would you like to take a vacation but have found it tough to travel with your…
A Rare Disease and Hannah’s Fight
February 28th is Rare Disease Day: http://www.rarediseaseday.org/ For many parents having a child receive a diagnosis can be heartbreaking. But add the words ‘rare’ and ‘fatal’ to that diagnosis and heartbreak turns into terror. Where do you find doctors to help in your child’s fight for life? Are there treatments? Are there others out there…
Things you wish you didn’t know
I would love to tell you that all went well with Peyton’s clinic visit last week. I would also like to tell you that I have no idea what complete heart failure feels like. However, either statement would be a LIE! Unlike the poor readers on my personal blog, I won’t make YOU all wait…
Grief and Siblings
Written by Chrissi When a child passes away, the pain for all is so hard to comprehend, especially for a sibling. We, as parents, have our own grief and our own pain and we tend to not be aware of what our children, the siblings may be feeling. I know for our family that was…
Spreading The Love With My Wonderful Walls.com
Some people just like to spread love. Stephanie and her husband from My Wonderful Walls are two of those people. Creating individual works of art with their Kids Murals and Nursery Murals, this husband and wife team are growing their new business by planting seeds of love. Stephanie was so sweet to send Parker a…
The Truth About Cyclic Vomiting Syndrome
January is National Migraine awareness month. And while most people have some level of familiarity with migraines, relatively few have ever even heard of cyclic vomiting syndrome, or CVS even though it shares many similarities with migraines. At our home, we know CVS so well that we’re on a first-name basis. It’s a relatively rare…
Saving Medicaid
At the end of this post I’m asking for your help. So please stay with me to the end of this post. A few days ago the question of whether the state of Utah should either support the elderly disabled or preschoolers with autism. Adult Protective Services, an agency that helps protect autistic elderly adults…
At least it’s not meth, right?
Guess what I’ve found out about childhood cancer…one of the long term side effects is apparently a raging case of hypochondria. It’s not hard to figure out, but Peyton is addicted to pills. Not in an Amy-Winehouse-Betty-Ford-bound sort of way…but I suppose that’s what happens when you take daily medications for thirty months. Now that…