I’ll never forget the first time my Max laughed. He was about three months old, I made a funny noise and he let out this “Heh, heh, heh” that cracked me up. It felt good to laugh; I’d cried a lot during the first few months of his life. Another happy memory: When Max was…
Category Archives: Conditions and Diseases
A great day at the aquarium (and other minor miracles)
On Saturday, we road-tripped to a wonderful place, Adventure Aquarium. Both kids had an amazing time, but I was especially thrilled to see how excited Max was. He ran right into the aquarium, dragged us from room to room, and basically had the time of his life. Up until Max was four or so, we literally…
The Diagnosis
Written by Natalie: Every parent to a special needs child has that story. You know the one, the one we never wanted to have. The diagnosis story. As an introduction, I thought I would share ours. It was the first of many diagnosis stories to follow. So, how was my daughter Mandy diagnosed? The answer…
The need to seem “normal”
Hi, everyone. So, the wonderful pediatric neurologist I mentioned in my post from last week on doctors who have given you hope did e-mail me back. He was very happy to hear that Max was doing so well. I was really glad I’d gotten in touch—he deserved to know. This picture is from Friday, a…
The Truth About Cyclic Vomiting Syndrome
January is National Migraine awareness month. And while most people have some level of familiarity with migraines, relatively few have ever even heard of cyclic vomiting syndrome, or CVS even though it shares many similarities with migraines. At our home, we know CVS so well that we’re on a first-name basis. It’s a relatively rare…