The scene: Saturday morning. It is 70 degrees and gorgeous outside. Max and I are roaming around, and see two little boys on our block with their Razor scooters. Max is so excited to see them, he loves other kids and anything with wheels. He runs over. “Hi!” he says, and smiles. The boys look…
Category Archives: Day In And Day Out
Preparing For A Medical Emergency With A Medically Fragile Child…
A very wise NICU nurse once told me, “Sometimes the difference between life and death is in being prepared.” I took those words to heart and they saved my daughters life. More than once. When you have a medically fragile child, it can feel like you barely have time to catch your breath before the…
Acceptance
That’s what’s been on my mind these past couple of days. This weekend, my husband and I went to a ceremony honoring teen volunteers for a Sunday morning program Max attends. It’s for kids with special needs, and it’s really amazing—Dave drops Max off at 9:30, and picks him up at 12. They sing, make…
The Problem Isn’t Really The Problem
Don’t get me wrong, Fetal Alcohol Syndrome presents itself in the form of many problems for my son and our family. But sometimes, well, sometimes the problem isn’t really the problem. We are a homeschool family and over the past year we have not seemed to accomplish much. It was decided that Lee was the…
Try This Tuesday #32: What Should I Try?
If you’d like to join in but aren’t sure what to write about, try the topic suggestion for this week: What Should I Try? Share something that has you currently looking for answers or ideas and we can all help each other brainstorm. My planned guest post did not come about this week, so I…
Transforming PT into Play Time…
The “to do” list during the day when you parent a child with medical challenges can be overwhelming. And long. Such a list can include everything from specialty feedings, to medications, to dressing changes, to management of medical equipment. And then of course there are all of those physical therapy and occupational therapy exercises that…
Ashley and The Short Bus
A while back I was asked a question by a remarkable young man named Jonathan Mooney. The tag line on Jonathan’s website is “Author, Public Speaker, Different”. The publisher of his two books describes him on their web page: A young man, once called unteachable, journeys across America to investigate the lives of those, like…
Why Tuesday is worse than Monday
“How has she been this month?” The doctors at Peyton’s clinic will ask me this Tuesday afternoon, the same way they do every month. Three Mondays of every month I write my post here and I’m doing ok…because Peyton’s doing ok. That fourth Monday is the night I think and process everything that’s happened over…
Right, Left, Does It Really Matter
Life events of recent months have caused me to think way too much about everything. So I’ve decided to quit…thinking so much, that is. Let’s face it. In the end does it really matter if the right boot was on the left foot or the left boot on the right foot…that we have this diagnosis…
Try This Tuesday #30: Teaching the How and Why of Hygiene
If you’d like to join in but aren’t sure what to write about, try the topic suggestion for this week: Teaching the How and Why of Hygiene. *****Unfortunately, I have been out of commission for the last several days due to a severe migraine, so I wasn’t able to write about our experiences with this…