Speak Now for Kids is an advocacy campaign of the National Association of Children’s Hospitals (N.A.C.H.) designed to engage child advocates in communicating with Congress before they cut funding for two key children’s health care programs: Medicaid, which funds health care coverage for one in three children in the U.S. and the Children’s Hospital Graduate…
Somebody decided to “clean” the living room: Maybe I can get him to do the laundry next, 😉 Share what you managed to capture this week. Please spread the comment love around. Thank you.
“Did you notice how angry your sister is getting when you talk to her like that?” “Can you see that mom is frustrated when you’re not listening?” “What do you mean, you didn’t think she was sad? She’s crying!” These might seem like things only parents with kids on the Autistic spectrum may say to…
While you’re reading this, I’ll be at the hospital waiting while my son has a procedure to check on his feeding tube and its mysterious issues. I got the prerequisite call asking me for his medical history, confirming phone numbers of my other emergency contacts, and going over his plethora of medications. The nurse and…
Advice. We give it without thinking about it…unless it’s a touchy or emotionally charged subject, then every now and again we might stop for at least a moment and think about what advice we might dispense. Then there are some situations where advice is a given even if it isn’t wanted or needed. Pregnancy for…
We’ve hit another strange milestone. I think the child has learned how to lie. Not that she does it well, mind you. Previously she has been honest to a fault: Why is your brother crying? Because I hit him… Ah. Whether I liked the answer or not, at least I knew it was true. There…
A friend gifted us with tickets to a pumpkin patch, which we happily used the weekend before Halloween. Turns out it’s actually a working farm the rest of the year so the boy got to “work”, 🙂 Share what you managed to capture this week. Please don’t forget to spread the comment love around.
Shirt soaked, the suds engulfed my arms. Water sloshed as she fought me. She’s 9 and I’m still stronger, so I finally got her in the tub. Breathing hard, I knelt next to the bath, stroked her dark hair, poured calm words over her anguish. Warm water wrapped her struggle-reddened skin. She slowly calmed, began…
I’ve been a little slack at posting here. And today, I’m leaving you with a picture that I found and I want to adapt it to be my new mantra. The reason for the short post today is: I am currently in  Wisconsin at the Institute for Patient and Family Centered Care conference. Only 1…
It was a relatively easy, but somewhat mind-numbing task to accommodate the child’s fixed preferences at her place setting. We don’t have quite enough “matching” flatware pieces to make it to the next dishwasher run. We tend to run out of teaspoons and case knives before plates and bowls. Over the years of combining two…