I was at an event the other day with a bunch of bloggers. I struck up a conversation with another mom; when I mentioned my blog, she said, “Oh! I know that blog! I read it.” Pause. “But I don’t have a kid with special needs.” Grrrrrr. Why oh why did she have to mention…
Being a mom
Chaos. Happy, delirious chaos. Tim ran upstairs because, even at 10 p.m., two four-year-old girls—who did not nap yesterday—were still awake. Giggling. Talking. Playing. Jackson had long earlier fallen asleep on Esther-Faith’s bed. But the girls, they were still awake—sharing the vacation bed—and making all kinds of indications that they might be awake all night….
Facilitating friendships with the opposite sex-Step One
I’ve grown tired of telling Matthew that he’ll meet a nice girl someday. I’ve decided to help him, and started by asking myself three questions: 1) What is the biggest obstacle that prevents Matthew from meeting girls? 2)What is the best way to help him with his socially awkward behavior so that he doesn’t scare…
Those Who Understand, and Those Who Don’t
I read a post yesterday from one of my favorite bloggers, Jess at Connor’s Song. While the post was primarily about Jess’s nesting instincts and the new daughter she and her husband are adopting, she shared some of the comments people have made about that adoption. Those comments, most of them insensitive, really struck a…
Special Exposure Wednesday.
Last week Ivy got to have some time off the IV antibiotics. Sadly, we didn’t make it a week until she became sick but we did have time to go outside and smell the roses. It was nice. Got something to share? Why don’t you join in this Special Exposure Wednesday. Please remember your comment love…
My better half
I’m sitting in the car pecking this out on my BlackBerry. We’ve just fed the kids dinner, en route home from a weekend at the beach. “Are you going to tell everyone how well I feed Max?” Dave asks. “Yes!” I say. I’m dedicating this post to Dave, my better half. He really is a…
Who do you trust to care for your child?
As it is, it’s difficult to leave my son with “just anyone” because his tracheostomy and g-tube care require training. But what happens when the person trained cannot be trusted? I would like to believe that because someone is licensed, trained and “seems” like a good fit that they can be trusted with my child’s life. I would like to believe that the nursing agency has hired and screened candidates thoroughly.
Last week I found out the hard way that that is just not always true.
Spina Whatida?
As many of you know, I just adopted a 15 year old young man named Ronnie. Ronnie is deaf and has spina bifida. Since my youngest daughter is also deaf, making sure Ronnie has all the appropriate supports isn’t new to me. But the spina bifida is. I have a bunch of questions. For instance,…
Special Exposure Wednesday.
I’m so sorry about last week but things got on top of me and by the time I got it together to post for SEW it was too late. Here she is after port access went belly up. It was the first time I had to access her and we were both sad. She’s on…
How do you get the stress out?
This weekend, I was feeling kinda stressed. I had a lot of work to do, Max had a cold and was getting whiny, and I’d had barely any time to myself all week long. So I made Dave take the kids out for lunch so I could have the house to myself. Being alone in…