The holiday has passed, the change of season seems to be upon us – something I am nothing short of thankful for. It’s this time of the year I get energized, my mood is much happier, the bounce is added to my step. If this morning is any indication, it’s a good thing it is….
Tag Archive: seizures
Waiting for Treatment
I want to write to you to tell you all the positives that can come from special needs, or rather, what we learn and how we grow as individuals raising children with special needs. I want to give inspiration rather than sorrow, the promise of a rainbow after the clouds. But I can’t. Not because…
Stop Staring at the Screen
STOP LOOKING! …at that screen I tell myself as I watch the squiggly lines of blue, green and red make their mark on the EEG monitor. It’s not like it’s going to tell me anything. It’s not like I’m going to stare hard enough, long enough, likely drying out my contacts…and decipher electroencephalograms on this…
My Angel
I knew that my body was giving everything to this little person growing inside me. I knew my life would never be the same; that our lives would never be the same. There were no words to express the happiness I knew my belly contained. I knew that this little being was my angel; my…
Worrying About the Consequences of Injury Incidents
Enjoying the warmth of the moment, the neighborhood is outside. A few adults finding conversation, a flock of young kids finding themselves energized in a game of kick ball. It’s safe, it’s warm, friendly and fun. Until… I like to say C is our kids’ favorite toy. He can play any game with enough zeal…
I Hope We Can Stop EEGs Sometime Soon
Today we’re checking into Children’s Hospital for J’s biannual EEG. We’ve been anticipating this for…well, for about 6 months, since his last EEG so we can get a better grasp of what’s going on for him. His last EEG, July 21, 2010 showed him still having 50% of his REM in spike and wave activity,…
Who Needs Sleep?!?
Sleep is for the Weak. Yes. Someone knew what they were saying when they developed that title for a book. For 6 years, we didn’t sleep. I mean…Didn’t. Sleep. That’s part of the unofficial, official symptoms of Landau-Kleffner Syndrome (epilepsy). For us, it means putting J to sleep for 2 hours, he wakes, tosses and…
If Only I Could Make It Stop
Your day started off rough, didn’t it my sweet Ashley? Just like so many other days recently. Although you wake up with a smile on your face, it’s not long before a seizure steals the morning joy from you. I know you don’t understand the funny feelings in your head just before the seizure erupts….
Jolly Holly and the New Su Review
Su and my daughter, Ashley, have several things in common – dark, curly hair – a seizure disorder – and Moms who think the sun rises in their eyes! I’m sure you will enjoy meeting Holly and her beautiful daughter as much as I have. Tell me a little about yourself and your family. Hi,…