In addition to her job as a computer engineer and her single parent responsibilities, Deborah is president of a state-wide family support group for families whose lives are touched by deafblindness, and is a tireless advocate for all people with disabilities. She writes at Pipe Cleaner Dreams and her writing has also been featured in local magazines and newspapers. Ashley’s story has also been chronicled in a book by Jonathan Mooney titled Short Bus Stories.
Written on
September 9, 2009 by
Deborah
Hello. My name is Deborah and I am a picture addict. Back in February, I hinted at my addiction in my post about Works of Art, but now I am admitting openly that I have way too many pictures of my children displayed in my home. Ok, I hear you scoffing – how can a…
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Written on
September 2, 2009 by
Deborah
I’ve had many difficult decisions to make in my life, but the two most absolute heartwrenching ones were my decision to divorce my abusive husband, and my decision to place my daughter, Jessica, in a group home. I now know that my divorce was in everyone’s best interest although it’s hard to see that when…
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Written on
August 26, 2009 by
Deborah
Did you think I wouldn’t notice? Yes, Ashley can be quite the enigma at times, but even then, her unpredictability is predictable. But drinking coffee? Never would I have predicted that. Drinking unsweetened iced tea? Nope, not that one either. Then on Wednesday she walked into the house clutching a paper sleeve of Ritz crackers,…
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Written on
August 19, 2009 by
Deborah
I’m ambivalent. I’m so ready for two of my children to go back to school, and not so ready for the other two to return. My son diagnosed with Asperger’s NEEDS to go back to the routine of the classroom. While his school year is not always easy, his emotional well-being is a little steadier…
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Written on
August 5, 2009 by
Deborah
I pulled today’s post from my archive for two reasons – the new school year will soon be upon us, and I, like many other parents I know, are still battling the same things we have battled for years. I would like your comments, especially comments with strategies to make this school year better than…
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Written on
July 29, 2009 by
Deborah
Yesterday afternoon I sat in a meeting with a behavior specialist, a case manager, day support staff and group home staff – all to discuss my daughter, Jessica and her ongoing and increasing aggressive and negative behaviors. Jessica’s negative and aggressive behaviors are not new. Every since I adopted her nine years ago, she has…
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Written on
July 22, 2009 by
Deborah
My children and I have been in a lot of doctor’s offices recently. I try to schedule as many of our appointments as possible during school breaks, and it seems I am doing a good job this summer. Between all of us, we have visited or will visit the hospital MRI department, the rheumatologist, the…
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Written on
July 15, 2009 by
Deborah
It’s that time of year again – the lazy hazy days of summer. Visits to the pool and beaches, cookouts, catching fireflies at night – making wonderful memories of a time slowed by heat and humidity. Unfortunately, it is also a time when many children will lose their lives through absolutely no action of their…
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One of the things I remember most about becoming a mother for the first time was all the ‘firsts’. The first smile – the first solid food – the first word – the first steps. It was like the first year and a half of my son’s life was a constant celebration. But when you…
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I get so used to medical procedures being difficult for Ashley that when something good happens, it’s like receiving an unexpected gift. We received one of those gifts recently, and I want to publicly thank Carilion Labs and the wonderful folks who did blood work for Ashley yesterday afternoon. Until recently, there was only one…
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