Written on
June 8, 2009 by
Ellen
The other day, I had to make an appointment for a hearing test for Max, which means I needed to find someone who specializes in kids with special needs as Max is mostly nonverbal. Woo hoo! Another expert in our life. I did a tally, here’s who is on Team Max: * The pediatrician *…
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Written on
June 1, 2009 by
Ellen
We had Max’s annual evaluation at his school on Friday. He’s made great progress in all areas, but I have a concern. Max is the most high-functioning kid in his class, besides another little boy who can talk in sentences (Max has a few dozen words right now). The other kids are nonverbal. Max had…
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Written on
May 25, 2009 by
Ellen
As you read this, we’re en route back from our Disney cruise on The Magic. Last year, we took the kids to Disney World, and they were so enchanted we decided to do something Disney again. Taking Max on vacation is sometimes a little unnerving, as we don’t know how he’s going to react to…
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Written on
May 11, 2009 by
Ellen
Oftentimes, people who don’t Max that well—coworkers, neighbors, acquaintances—ask questions about him. I’ve mastered the art of the succinct, upbeat response. Here’s how it usually goes: They say: “How is Max doing?” I say: “Well! He’s really coming along.” What I really mean: He amazes us each and every single day because he’s doing so…
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Written on
May 4, 2009 by
Ellen
Max has this habit of running his toy trucks, cars and planes back and forth across the dining room table. It makes a lot of noise. It leaves pock marks in the wood. It ends up totally grating on my nerves to the point where I will finally say, not so softly, “Max!!! PLEASE, stop!” …
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Written on
April 27, 2009 by
Ellen
Saturday, I was out with my little girl, one of my best friends and her little girl. We took them to see a children’s Cinderella ballet, and we had a little time to catch up before it started. Her daughter’s had some delays and has been getting occuaptional therapy, and I asked how she’s doing….
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Written on
April 20, 2009 by
Ellen
This is Max at two years old. He’d just started lifting himself up onto all fours; before that, he commando crawled for months. My husband and I were thrilled that he was finally doing something that “typical” tots did. Back then, we were so excited anytime he did anything that was in the baby…
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Written on
April 13, 2009 by
Ellen
This is Max when he was eight months old, about the time he started doing baby food. As you can see, more of it typically ended up on his bib than in his mouth. From the first time he ate, he’d thrust food out of his mouth with his tongue. It was an issue that took…
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Written on
April 6, 2009 by
Ellen
Having a kid with special needs often means that a good part of your life is spent working around or through your child’s challenges. Friends and family may say things to you like “How do you do it?” but the answer is simple: you do it because this is a normal part of your life,…
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Written on
March 30, 2009 by
Ellen
This is Max at 18 months with my sister, Judy. Ever since he was born, she and my mom have been Max’s biggest fans—they think he is THE most handsome, cute little boy ever. I can’t argue with them. Whenever they come to visit, I know that Max is in the best of hands. They’ve…
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