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How many experts are in your child’s life?

The other day, I had to make an appointment for a hearing test for Max, which means I needed to find someone who specializes in kids with special needs as Max is mostly nonverbal. Woo hoo! Another expert in our life. I did a tally, here’s who is on Team Max:  * The pediatrician *…

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Should he stay or should he go?

We had Max’s annual evaluation at his school on Friday. He’s made great progress in all areas, but I have a concern. Max is the most high-functioning kid in his class, besides another little boy who can talk in sentences (Max has a few dozen words right now). The other kids are nonverbal. Max had…

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Going on vacation with a kid who has special needs

As you read this, we’re en route back from our Disney cruise on The Magic. Last year, we took the kids to Disney World, and they were so enchanted we decided to do something Disney again. Taking Max on vacation is sometimes a little unnerving, as we don’t know how he’s going to react to…

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The art of talking about your child

Oftentimes, people who don’t Max that well—coworkers, neighbors, acquaintances—ask questions about him. I’ve mastered the art of the succinct, upbeat response. Here’s how it usually goes: They say: “How is Max doing?” I say: “Well! He’s really coming along.” What I really mean: He amazes us each and every single day because he’s doing so…

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The times when I run out of patience

Max has this habit of running his toy trucks, cars and planes back and forth across the dining room table. It makes a lot of noise. It leaves pock marks in the wood. It ends up totally grating on my nerves to the point where I will finally say, not so softly, “Max!!! PLEASE, stop!” …

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Talking about your kid with friends who have typical kids

Saturday, I was out with my little girl, one of my best friends and her little girl. We took them to see a children’s Cinderella ballet, and we had a little time to catch up before it started. Her daughter’s had some delays and has been getting occuaptional therapy, and I asked how she’s doing….

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A different kind of milestone

  This is Max at two years old. He’d just started lifting himself up onto all fours; before that, he commando crawled for months. My husband and I were thrilled that he was finally doing something that “typical” tots did. Back then, we were so excited anytime he did anything that was in the baby…

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Eat, pray, love

This is Max when he was eight months old, about the time he started doing baby food. As you can see, more of it typically ended up on his bib than in his mouth. From the first time he ate, he’d thrust food out of his mouth with his tongue. It was an issue that took…

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Celebrating our children’s strengths

Having a kid with special needs often means that a good part of your life is spent working around or through your child’s challenges. Friends and family may say things to you like “How do you do it?” but the answer is simple: you do it because this is a normal part of your life,…

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Who do you trust to take care of your child?

This is Max at 18 months with my sister, Judy. Ever since he was born, she and my mom have been Max’s biggest fans—they think he is THE most handsome, cute little boy ever. I can’t argue with them. Whenever they come to visit, I know that Max is in the best of hands. They’ve…

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