Ivy’s sleep study went okay. She was wired up and sent off to sleep, monitored by the machines and recorded on the camera. At 5:30 am we were woken by an abrupt nurse with a stern face. Vague questions about typical sleep patterns and snoring ensued as she pulled the wires from her skin. No,…
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Author Archives: TiffandIvy
Bringing up seven kids has led to in depth knowledge of asthma, autism, fetal alcohol syndrome and drug induced developmental delay, immune deficiency and autoimmune disease, ectodermal dysplasia, neonatal death and cardiac defect. Despite all of that, I didn't know I was about to start the ride of my life with the illness of my youngest daughter, Ivy.
Special Exposure Wednesday.
Written on March 10, 2009 by TiffandIvy
Ivy is wired for sound! Being wired up for a sleep study last night. Oh the things we do! Got something to share this Special Exposure Wednesday. Please remember your comment love at each link you visit. Also blogging at Three Ring Circus
Meltdown Revelation (revolution).
Written on March 5, 2009 by TiffandIvy
In February, we went to see Ivy’s immunologist. The best news of the day was that Ivy was approved for more Intragam. Another six months, before we have to present her case again but the immunologist felt that it really would not be an issue. Over the course of the last six months, Ivy’s IgM…
Special Exposure Wednesday.
Written on March 3, 2009 by TiffandIvy
They say that laughter is the best medicine. Noah and Ivy think so. Got something joyful to share? Join us this Special Exposure Wednesday. Please remember your comment love at each link you visit. Also blogging at Three Ring Circus
Expectations.
Written on February 26, 2009 by TiffandIvy
Last week we went to Malachy’s IEP interview. We talked about reading and writing and comprehension and all the things that the teacher thought we wanted to hear about. Key learning areas that must be important to some parents but for us, for Mal, are the least of what we want for him. Mal…
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Special Exposure Wednesday.
Written on February 24, 2009 by TiffandIvy
There are ways around being ‘scared’ of the swimming pool. Ivy makes the most of a hot afternoon. Got some fun times to share? Join in the fun at Special Exposure Wednesday. Please remember your comment love at each link you visit. Also blogging at Three Ring Circus
In A Heartbeat.
Written on February 19, 2009 by TiffandIvy
I don’t know alot about heart abnormalities, really. I only know that aortic valve stenosis was one of the reasons my son died. I know that AS comes as mild, moderate, severe and critical and that Will’s was critical. I know that AS means that a usually tricuspid valve can be bicuspid and that the three leaves…
Special Exposure Wednesday
Written on February 17, 2009 by TiffandIvy
Do you think these…er…offerings that Ivy ‘baked’ are gluten and lactose free? She assures me they are. Got something playful to share? Join us here at Special Exposure Wednesday. Please remember your comment love at each link you visit. Also blogging at Three Ring Circus
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The (quiet) happy dance.
Written on February 12, 2009 by TiffandIvy
While Australia reels with devastating fires in the state of Victoria, lives and homes lost, thousands not knowing what will become of them, we have had a busy week of medical appointments. It seems wrong, somehow, to be celebrating but I have to say we are all pretty happy in this house. Ivy was approved…
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Special Exposure Wednesday.
Written on February 10, 2009 by TiffandIvy
Even bad news can’t keep a girl down for long. Ivy loves feather boas. They are her comfort thing. Got something flamboyant to share? Why don’t you join in this Special Exposure Wednesday. Please remember your comment love at each link you visit. Also blogging at Three Ring Circus
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