Four months ago, Ivy went for an echocardiogram because she had a fast heart rate and a murmur. It was discovered that she had two nodes in competition for the sinus rhythm. Along with this they also found some pulmonary hypertension. It was not too bad, just a little high and after much discussion it…
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Author Archives: TiffandIvy
Bringing up seven kids has led to in depth knowledge of asthma, autism, fetal alcohol syndrome and drug induced developmental delay, immune deficiency and autoimmune disease, ectodermal dysplasia, neonatal death and cardiac defect. Despite all of that, I didn't know I was about to start the ride of my life with the illness of my youngest daughter, Ivy.
Special Exposure Wednesday.
Written on February 3, 2009 by TiffandIvy
Ivy’s newest ‘disease’… self named “sticker pox”! Got something funny to share? Why don’t you join in this Special Exposure Wednesday. Please remember your comment love at each link you visit. Also blogging at Three RIng Circus
The Meltdown Week.
Written on January 29, 2009 by TiffandIvy
When Ivy has the infusion of Intragam, she usually has a couple of days where she feels pretty ordinary afterwards. Generally achy after a night of sweats and high temps. After that, though, she gets an unmistakable boost in her energy. A period of time when she is just a normal preschooler, doing what all…
Special Exposure Wednesday
Written on January 27, 2009 by TiffandIvy
She may be little and sick but she loves wholly and protects her twin brother fiercely. Here they are, watchng the sun set, on the Australia Day weekend just gone. Got something special to share? Join in with us this Special Exposure Wednesday. Please remember your comment love at each link you…
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“Overprotective”
Written on January 22, 2009 by TiffandIvy
Photo taken by AJ We went to the paediatrician last Monday. Ivy’s ears were awful and I was at my wits end with what to do with them and the girl, who was getting sicker by the day. After months of wellness. The appointment was typical. He checked her ears, weighed her and talked…
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Special Exposure Wednesday – Just Monkeyin’ Around.
Written on January 20, 2009 by TiffandIvy
Nothing like building a bear…er, I mean monkey to lift the spirits of the sicky kid. Ivy had a wonderful time and took home her new friend, “Pinkie”. Got some monkey business to share? Why don’t you join in at Special Exposure Wednesday. Please remember your comment love at each link you visit. …
Decisions
Written on January 15, 2009 by TiffandIvy
This April, my first born son would have been celebrating his fifth birthday. He would have, except that he died, when he was five days old. Five years is a milestone. A milestone for a little boy, A milestone for a mother, A milestone in grief. Five years, all the books state, is when most…
Special Exposure Wednesday – Simple Pleasures
Written on January 13, 2009 by TiffandIvy
It’s the simple things in life that often create the most pleasure. Ivy and Noah were given a spinning lights torch and it kept them occupied for the whole day! Want to share some of your simple pleasures? Join in with us at Special Exposure Wednesday. Please remember your comment love at each link…
Special Needs?
Written on January 8, 2009 by TiffandIvy
I’m not sure Ivy qualifies as a special needs child. For the last four months we have had a fairly ‘normal’ life. Or normal, in comparison to four months ago, at least. It’s funny how we gage things, isn’t it Because it’s not really normal that my, just turned three year old, understands what a canula is,…
Special Exposure Wednesday – Sorting and stacking
Written on January 6, 2009 by TiffandIvy
For as long as I can remember Ivy has loved to sort and stack, particularly when she is stressed or sick. Got something quirky to share? Join us this Special Exposure Wednesday. Please remember your comment love at each link you visit. Also blogging at Three Ring Circus
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