Only three more days before the next infusion. The first for the year. She is really ready for this one. December has been a tough month for Ivy and her ability to fight off infection, not so great. She has so much more going on but I have been to… scared to talk about it much….
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Author Archives: TiffandIvy
Bringing up seven kids has led to in depth knowledge of asthma, autism, fetal alcohol syndrome and drug induced developmental delay, immune deficiency and autoimmune disease, ectodermal dysplasia, neonatal death and cardiac defect. Despite all of that, I didn't know I was about to start the ride of my life with the illness of my youngest daughter, Ivy.
Special Exposure Wednesday – Christmas Day Blur.
Written on December 30, 2008 by TiffandIvy
Our first Christmas at home in three years went in blur of good food, good times, family and fun. Ivy and Noah taking a spin on their Wheely Bugs at… oh, about 5am on Christmas morning. Got some special times to share? Join in the fun at Special Exposure Wednesday? Please remember your comment…
The First Christmas.
Written on December 25, 2008 by TiffandIvy
Her eyes are bright and filled with the twinkle of a thousand tiny lights. She drinks in her surroundings. The crowd seems to breathe in collective unison. The scene is beautiful, the gardens awash with colour, the carols pipe through the air. The night is perfect. It’s not hot anymore and a gentle breeze kisses our…
in Advocacy
Special Exposure Wednesday – Waiting For Santa
Written on December 23, 2008 by TiffandIvy
Ivy and Noah take the literal meaning of “Christmas stocking” to the extreme! I discovered them at the end of my bed when I woke yesterday morning. They were waiting for Santa. Got some Christmas cuteness to share with us on Special Exposure Wednesday? Please remember your comment love at each link you visit. http://i267.photobucket.com/albums/ii305/childslife/5MFSN/Ivysiggy.png
Immy’s wish.
Written on December 18, 2008 by TiffandIvy
When my daughter, Imogen, was seven years old, she sat on Santa’s lap in the shopping centre, closest to our house and asked for one thing. She asked for new teeth. Grade two had been particularly hard for Immy as she had been the brunt of playground teasing by some horrid little girls who obviously thought…
Special Exposure Wednesday – Merry Kissmas!
Written on December 17, 2008 by TiffandIvy
…and a huggy New Year! Do you have some Christmas Spirit to share? Join us here this Special Exposure Wednesday? Please remember your comment love at each link you visit. Also blogging at Three Ring Circus
Dear Santa,
Written on December 11, 2008 by TiffandIvy
Last year when everything went haywire and Ivy was covered in painful blisters and so very sick, my Christmas wish was for answers. I remember specifically asking you for this, when nobody would listen to me and when there were no doctors who would help us. On Christmas Eve, when Ivy was unwell and weak,…
in Uncategorized
Special Exposure Wednesday – dawn fairies.
Written on December 10, 2008 by TiffandIvy
There is magic in the everyday. It’s all around us. Hand in hand, Ivy and Noah greet the morning very early. Have you found some magic to share with us this Special Exposure Wednesday? Please remember your comment love at each link you visit. Also blogging at Three RIng Circus
So, now what?
Written on December 4, 2008 by TiffandIvy
After you have spent a large part of your time in and out of doctor’s rooms and hospital, things begin to take on a kind of routine. Have you ever noticed that? You come to expect that you will see the staff in the ward and the familiar medical professionals who have followed you through….
in Family Life
Giving Thanks.
Written on November 27, 2008 by TiffandIvy
We don’t celebrate Thanksgiving in Australia. There is no gathered family, no holiday celebration, no dinner with all the trimmings. In Australia it is just any other day, week, month of the year. I often wonder why we don’t have a celebration like it, a time to be truly thankful. Of course, the tradition of…
in Family Life, Holidays
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