I sat backstage tugging off her ballet slippers, coaxing her to help put crayons away amidst a giggling knot of pint-sized ballerinas. With the recital just days away, it was a relief to finally be done with the dress rehearsal and my thoughts wandered toward dinner and bedtime plans as I scrabbled after one last…
Category Archives: Advocacy
Now I Lay Me Down To Sleep
Caring for a medically fragile child is one of the hardest things parents will ever face. Although keeping up with medicine schedules, feeding schedules, and all the required doctor and therapy appointments can be tough, the most difficult thing, in my opinion, is being afraid to sleep. Sleeping might mean that you miss the seizure…
Field Trip
We wait in line, you and me, for our turn on the ride. You talk about your “adventure” and what is happening in your imagination, right now, as you cope with this change in your day. You talk loudly, with inflection and feeling, so that others around you pause to hear what you have to…
How a little bear named Hope made history
Over the years, I have met some wonderful people online who have become an some of my closest friends. Being able to meet them in person, even just once, has helped solidify friendships that have lasted almost a decade. Throughout this journey with Hannah, I have also met some wonderful people. Some who have become…
Always Believe, Always Hope
Are the worries over your child’s future weighing heavily on your mind and heart? Mine are. Are you feeling a littel overwhelmed right now? I am. Do you need a dash of hope today? I do. Dan Keplinger’s mom felt these same things. Yet look at Dan today… Now, after you dry your eyes, check…
Try This Tuesday #42: Know Who To Call For (IEP) Help
Welcome to this week’s Try This Tuesday. For details on how to participate, please check out the welcome post. Good News and Bad News I was pleased last Thursday to receive a draft copy of my son’s IEP, a week ahead of the team meeting as I had requested. Yippee!! Less pleasing was the fact…
For Tuesday…
One of the greatest, most wonderful, empowering things about blogging is learning that you’re not alone. That you don’t have to do this by yourself. That there is a whole community of people who genuinely care about what you’re going through… The lovely Debi from Who Says 8 Is Enough? is hosting a very special…
Some Thoughts as Autism Awareness Month Comes to an End…
The month of April is coming to a close, and with it ends Autism Awareness Month. However, so many of us don’t have an end to Autism. It is an ongoing, daily struggle filled with accomplishments, setbacks, discoveries, joy and pain. It is a journey, and the topography changes moment by moment. However, it is…
Got Something To Say?
So. How ya been? Hmmm… La-dee-da-dee-dum… Well, this is kinda awkward, huh? What with you expecting to come here and find a brilliant, witty post and me still having one horrendous case of writer’s block and all. Seen any good movies lately? No? Me neither. Well, huh. This isn’t gettin’ any better as I type…
Hunger Bites
Just in the last two days, I have seen three news reports about people getting arrested for shoplifting food. I have to believe it is because the economic crisis has impacted so many families and left them desperate. But in an effort to help, my youngest daughter, Ashley, is trying to make a difference. Ashley…