From My File of Things That Make Me See Red: I’m the mother of a medically fragile child with special needs. This kid has spent many an hour circling the drain. As a matter of fact, I writing this post from his hospital room after a very unexpected surgery on Sunday. The bottom line is…
Category Archives: Advocacy
Act 62 – What Will It Really Mean for Pennsylvania?
Before I get into my post for today, I promised that I would announce the topic suggestion for next week’s Try This Tuesday ahead of time. Of course, you can still post about anything you want, but if you are so inclined, this week’s topic will be Pets. How do you decide whether getting a…
If Only I Could Make It Stop
Your day started off rough, didn’t it my sweet Ashley? Just like so many other days recently. Although you wake up with a smile on your face, it’s not long before a seizure steals the morning joy from you. I know you don’t understand the funny feelings in your head just before the seizure erupts….
Justice For All
The blog, Justice For All is sounding a call to arms for the disability community, saying this community is underrepresented within Obama’s transition team. Disability organizations are calling for more inclusion, jobs for those with disabilities within the new administration, as well as a domestic policy adviser who has experience with disability issues. Action Alert!…
Looking Back and Moving Forward
As I look back over 2008, I am amazed by the changes this year has brought in my life. And the biggest change by far has been my introduction to the world of blogging. I had no idea when starting Another Piece of the Puzzle last January that I would connect with so many other…
Can’t Go There? Can’t Get In?
December has been my month of inaccessibility. Throughout my 12 years with Ashley and her wheelchair, we have often gone places that were not accessible. When Ashley was small, it wasn’t a huge issue – I could just pick her up and carry her over a curb or up a few steps. That is impossible…
The First Christmas.
Her eyes are bright and filled with the twinkle of a thousand tiny lights. She drinks in her surroundings. The crowd seems to breathe in collective unison. The scene is beautiful, the gardens awash with colour, the carols pipe through the air. The night is perfect. It’s not hot anymore and a gentle breeze kisses our…
This Just In: No More Medicaid Waiting Lists
Wanna make a difference with just the click of your mouse? Renee Beauregard, a mom, adocate, and small business has laid out a very important proposal over at change.org. Oh. You haven’t heard about change.org? Let me fill you in a bit: “Ideas for Change in America is a citizen-driven effort to identify and create…
Blogger Interview – Dream Mom
Dream Mom, the subject of today’s interview, describes herself as a midwest mom sharing and reflecting on the love for her Dear Son and the challenges of everyday life with a severly disabled teenager. Make sure after reading her interview, that you visit her blog, Dream Mom! I promise you will not be disappointed! Tell…
Close up and personal
When I first started blogging and went in search of sites written by other parents of children with Down Syndrome, one of the things I noticed was a distinct lack of photos. Maybe it was fear of strangers seeing their children, or maybe it was just a level of ignorance about how to upload pics,…