She looked up at me, wrapped tight in the blanket that was holding her together. Thirty minutes she’d been yelling at math problems on crumpled paper in front of her. Pencils strewn around, nerves frazzled. Now she sat quiet. Smiling with those big brown tear-soaked eyes. Oh, she was so proud of her work! She…
Category Archives: Developmentally Delayed
Special Exposure Wednesday – Out Of Order
The holidays and school’s winter break has put us out of whack. Hopefully, we’re back to regular programming next week. Share what you managed to capture this week. Please spread the comment love around. Thank you. *photo credit
The (Not So) Fine Art of Negotiating With My Tween’s Bipolar
We’re getting ready to go to the beach. It’s New Year’s Day. (Yes, I know I’m lucky. Truly grateful!) While I’m packing, my daughter with anxiety disorder and Bipolar is escalating. She follows me around the house as I collect towels, bathing suits, beach shoes. “You threw out my old swim suit?!” She accuses, screaming…
Holiday Carols Were Not Written for Us
I have to tell you, I am a huge sucker for holiday music. I love hearing it while I shop in the grocery and when I’m in the car. I dream of falling snow flakes and cozy fires. I actually know all the verses of many traditional hymns and get mad when artists don’t sing…
The Hardest Word I’ve Ever Said
Seven years. Over a thousand hours at hospitals and specialist appointments. Countless interventions at home. And it turns out the most important word to help my daughter’s treatment is this: NO. No… we’re not doing a nineteenth round of medication adjustments. It’s time for hospitalization. No… I won’t take her home from the hospital and…
Special Exposure Wednesday – Took Over
Sorry I’m late but as you can see, somebody took over my laptop, 😉 Share what you managed to capture this week. Please spread the comment love around. Thank you.
Balancing Journey vs. Destination Mindset With Our Kids
“It is good to have an end to journey toward; but it is the journey that matters in the end.” – Ursula K LeGuin I think we as parents of special needs understand this more than any other parents in the world. And even still, I fight this truth so much. As someone who’s good…
Romanticizing Adoption and Special Needs
It’s tough being an adoptive parent. And a parent of special needs kids. I’m both. And today reminded me of one of the most frustrating aspects of our situation: other people romanticizing it. Sitting on a counselor’s couch at a residential treatment facility where one of our girls has been for 6 weeks, life doesn’t…
Waiting…. Waiting…. Waiting….
I don’t like waiting. Which is kind of ironic because I’m a mom, and a mom of multiple developmentally delayed kids. For years we’ve been waiting with one of our daughters – waiting for meds to kick in, for her moods to stabilize, for her mind to find balance. At our meeting with the counselor…
Post-IEP Discussion..
Wednesday was Jack’s IEP. Let me give you a little back story here. Jack’s “teacher” is a special education professional, who routinely wears fake hair and loud (loud isn’t the best adjective, but that’s all I can come up with) jumpers/sweaters. We refer to her as The General, because, quite frankly, that’s how she acts. Things…