I seem to be having poignant encounters with strangers lately. One was rather negative at the time, and one was astoundingly beautiful. I’m trying to learn from both and squeeze all the good I can from these moments. I’d like to share the beautiful one with you. We traveled for Thanksgiving, 400 driving miles, which…
Category Archives: Conditions and Diseases
Chanukah Oh Chanukah
Tonight is the first night of Chanukah. My kids are eagerly awaiting sundown so we can sit around the table to light the candles and of course open presents. When I was a kid, I didn’t like sharing the fact that we were Jewish. In the small town where I grew up, we were one…
Who Needs Sleep?!?
Sleep is for the Weak. Yes. Someone knew what they were saying when they developed that title for a book. For 6 years, we didn’t sleep. I mean…Didn’t. Sleep. That’s part of the unofficial, official symptoms of Landau-Kleffner Syndrome (epilepsy). For us, it means putting J to sleep for 2 hours, he wakes, tosses and…
I’ll feel better…
…After I talk about this. I need to preface this post by saying: I promise not all of my posts are serious. This just effected me so much and I feel the need to talk about it. You’ll understand this post more if you read THIS post first (don’t worry, it’s short). On Monday morning,…
Happy Birthday Precious!
Precious turned 5 this week. Her birthday party took place last Sunday. We booked it a local grocery store which runs cooking classes for kids and adults. The kids made pizza with their own dough and toppings, then fruit salad, then cupcakes that looked like reindeer. The cupcakes became their loot bag. While the pizza…
Therapy tools (part one): speech
I’m going to use my next couple of posts to talk about the tools we are using with J. I am in no way a medical expert or therapist; I’m only sharing what we have found to assist my daughter. At 20 months old, J is at a 6-9 month level for speech. She knows…
Dear Little One
Sometimes you can’t move forward until you go back, and I have realized that I have skipped so much of my journey with my daughters, just jumping in here without mentioning where I have been. One of my biggest challenges was the transitional time when Zoe was growing into a child with visible disabilities. This…
Addressing “The Look”
We’ve all experienced “the look” from folks whose mothers apparently didn’t teach them it’s not polite to stare. Sometimes it really bothers me. Sometimes not. Recently, I had the opportunity to unofficially analyze the look and figure out the difference…. for me! I spent a day at the Bronx Zoo with my 3 beautiful children —…
Smooth
Is it Saturday already? At times, this week has flown by. And at others, it has dragged on. Especially from 5 a.m. to about 11 a.m. on Tuesday morning when Tim had surgery on his foot. He plays in an adult soccer league and a week ago Tuesday, he got kicked in the foot. That…
Equipment.!
Equipment. ! We’ve been waiting since the beginning of July for a piece of equipment to be approved by medicaid. Today I called to check on it. I know I probably should have done it earlier, but really it’s not unusual to wait for this company. To get my son’s Wheelchair it took 9 months…it…