Category Archives: Conditions and Diseases

The times when I run out of patience

Max has this habit of running his toy trucks, cars and planes back and forth across the dining room table. It makes a lot of noise. It leaves pock marks in the wood. It ends up totally grating on my nerves to the point where I will finally say, not so softly, “Max!!! PLEASE, stop!” …

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For Tuesday…

One of the greatest, most wonderful, empowering things about blogging is learning that you’re not alone. That you don’t have to do this by yourself. That there is a whole community of people who genuinely care about what you’re going through… The lovely Debi from Who Says 8 Is Enough? is hosting a very special…

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A Fishy Tale (tail).

Ivy ate some salmon yesterday. David and I had sushi and she wanted to try it, so we let her. About an hour later she came out in big red welts and started to cough. It was just one small piece and I’m pretty sure she has had fish before. Before long she was scratching…

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Talking about your kid with friends who have typical kids

Saturday, I was out with my little girl, one of my best friends and her little girl. We took them to see a children’s Cinderella ballet, and we had a little time to catch up before it started. Her daughter’s had some delays and has been getting occuaptional therapy, and I asked how she’s doing….

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A different kind of milestone

  This is Max at two years old. He’d just started lifting himself up onto all fours; before that, he commando crawled for months. My husband and I were thrilled that he was finally doing something that “typical” tots did. Back then, we were so excited anytime he did anything that was in the baby…

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Fine Line between Research and Parenting

Not only does my beautiful little girl have an incredibly rare and fatal disease of which only a few hundred children have, but we recently found out that her DNA mutation combination (the combination of my bad Gaucher gene and my husband’s bad Gaucher gene) is something that has never been seen before and cannot…

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Eat, pray, love

This is Max when he was eight months old, about the time he started doing baby food. As you can see, more of it typically ended up on his bib than in his mouth. From the first time he ate, he’d thrust food out of his mouth with his tongue. It was an issue that took…

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What Parents of Refluxers Daydream About…

A family room with wall-to-wall linoleum, a hose reel and a drain. So Now You Know… 😉 Find out more about Michelle Read Michelle’s weekly column Meet Michelle here each Monday for Magic Marker Monday Questions? Please feel free to email Michelle at childlif[at]gmail[dot]com or come and visit her at In The Life of a…

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The Doctor Will See You Now

We live in a city that has many very good hospitals. One of those hospitals is a teaching hospital. It’s an inner city hospital which means should you have to visit the emergency room, you may find yourself sitting next to someone who has been shot or stabbed, and you will most assuredly hear very…

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Celebrating our children’s strengths

Having a kid with special needs often means that a good part of your life is spent working around or through your child’s challenges. Friends and family may say things to you like “How do you do it?” but the answer is simple: you do it because this is a normal part of your life,…

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