Saturday marked the 2 year anniversary since Jillian was diagnosed with Cerebral Palsy. Those first few days were a blur. Focusing mostly on survival and knowledge. I would stay up super late (like 3am) to research on how I could “fix” this problem. Oh poor naive me. There is no “fix”. We just have to…
Category Archives: Day In And Day Out
A Day in the Life…
(this is the truth, nothing but the truth…don’t be too jealous!) Saturday… 0430: “Momma! Momma! Awe ooo sweeping?” 0432: “MOMMMMMMMMA!” 0433: I glance at my husband to see if he’s awake. I contemplate kicking him or screaming bloody murder, but choose to whisper softly to my little darling that he should close his eyes and…
Strength in Numbers
It all started a little over two and a half years ago. We entered the room with no small amount of skepticism. We were embarking on “yet another behavior modification program” in a long string of attempts to bring our daughter’s aggressive defiant behavior into some semblance of appropriate. I, personally, was at my wit’s…
Special Exposure Wednesday – Julianna
Meet Princess Julianna, or more accurately Pixie Princess Julianna. Don’t let the angelic face fool you, the girl can hold her own against two brothers. Get to know her in her mom’s own words. Share what you managed to capture this week. Please spread the comment love around. *This is part of a month long…
Waiting…. Waiting…. Waiting….
I don’t like waiting. Which is kind of ironic because I’m a mom, and a mom of multiple developmentally delayed kids. For years we’ve been waiting with one of our daughters – waiting for meds to kick in, for her moods to stabilize, for her mind to find balance. At our meeting with the counselor…
A Dream Is A Wish, Your Heart Makes
As parents, we all dream about what our children’s future will be like. Will they be happy? Will they get married? Will they make me a grandparent? I’m a dreamer, I always have been and I always will be. Lately, I’ve been having a lot of uncertainty about how Jillian will grow up. I’m not…
Friday Frustrations…
You know, I hate to be a whiner. It’s just not part of my chemical make up. BUT, sometimes, by the time I get drug through the week by my hair, Friday is just the most frustrating day of the week! I feel like I’ve spent all week fighting with or for something, I get…
Thrive with Autism – Tips for Those Looking to Understand
Andrea Richardson and Andrea Warner are two teachers who want to help parents Thrive With Autism. We love these tips from www.ThrivingWithAutism.com that they are sharing; both for parents, and for the community who is trying to understand Autism. Have you ever been in a store, movie theatre, or, yes… even an elevator, and your…
Soothing An Anxious Child
Some kids just pop out of the womb self-assured and confident. Mine, not so much. Raising 2 former foster kids, assurance is like a foreign language in their minds! It’s been a huge learning process for us to figure out what works and what doesn’t in helping them find confidence in stress. And I know…
What to Do With Stolen Moments in a Continuing Crisis
Our family floats upon a cloud that delivers us from one crisis to another, sometimes playing bumper cars with the these crisis’ making them all blend into an amazing storm. I’m currently taking Certified Nursing Assistant classes for 5 hours per night (5 pm to 10pm) four nights a week for four weeks…not to mention…