We aren’t talking about major promises here. If we were, I would work as hard as I could to stay true to my word. I’ve blogged a lot about my friend Nena here in the past. And the last post I talked about her in, I had said that I would try not to talk…
One of the ways that Precious’ disability presents itself is through her low muscle tone, also known as hypotonia. When Precious was first born, her hypotonia showed itself through her general floppiness, and in the way she laid on her back with legs and arms akimbo, like a frog. She was really hard to pick…
I know what your thinking…NEW SCHOOL YEAR? How many days till school starts??? I have a friend that started counting the minute summer started. I enjoy our homeschooling time together. I love the beginning of a new year…the goals for the year, the dreams of what you want to work on, the reality of what…
Today, I am asking you to stop what you are doing. Go send your love and thoughts to Tammie… Parker is having his heart cath today. This is big. Bigger than any words I could write here. These are the days when being a SN mom is not so fun.
The other day I took the child to a nearby amusement park. We enjoyed our mommy-daughter outing with one of her friends and her mom. One of the rides we most enjoyed was the 100 year old carousel. It was truly beautiful. The horses had hair tails instead of painted ones, and there were even…
Seems that no matter where you live across our great country, this summer heat has been unbearable! Temps in the 90s and heat index in triple digits. Medically fragile children and adults need to take special care.
Sometimes, I’m amazed at my own craziness. Like when I plan to go to the store at the last minute before dinner with hungry kids and a child with SPD who forgot her jacket. Or when I go hiking in flip-flops…. “Mom! Are you okay?” My 4 year old yelled over the rushing water that…
Four weeks into Summer school — aka: Extended School Year (ESY) — and I’ve only brought The Boys in for 2 1/2 days. Bad Mama? OR, Bad Mama! Our contained class experience this past year included My Boys’ adopting some negative behaviors from a few of their peers with special needs. As such, I’ve been working this…
As parents of special needs children, we are often handed this poem, Welcome to Holland, originally written by Emily Perl Kingsley (If you need a refresher, click the link!) Most people, I think, give it to you with good intentions. However it is a little tiring getting the same poem over and over. I’m sure…
Around here, we have 2 months off every summer. Well, the kids do, anyway. The first two weeks of summer, the girls were home with a teenager from two doors down. They went to swimming lessons everyday and got lots of attention from the babysitter. The third week of the summer, Precious went to her…