I feel like I no longer have to pretend that I am the same as any other mom walking down the street. Because to be honest, I have spent an awful lot of time trying to convince myself of that. “Hey, I’m the same as you. I’m no different. I want the same thing for my son as you do for your children.”
Category Archives: Day In And Day Out
Your Thoughts?
I need your advice. This past weekend, my boys and I took a trip to Baltimore and left Ashley at home with her aide. The aide has been with Ashley for five years, so I am quite comfortable with the two of them spending the weekend together. Here is a picture of Ashley and her…
Butterfly Spring
This was the Spring that my little caterpillar turned into a butterfly. My sweet Ashley, the child who in the past would get very anxious when venturing out in a crowd, now gets very bored staying home. On the weekends, she is adamant that we must “go car” as she signs in American Sign Language….
Beach Chickens
One of Ashley’s favorite things to do at the beach is to feed the seagulls. I’ve taught all my children from a very young age how to throw food to one seagull, and almost instantly 20 more will appear. We’ve fed them from hotel balconies – we’ve fed them while we were on the beach…
Definitely NOT a Poor Thing
Why do most people say “awww, poor thing” when I tell them of Ashley’s significant disabilities? I admit that when I list all her issues, it might seem like she has a daunting job just existing each day. But I honestly don’t believe, and I think Ashley would agree with this assessment, that her life…
Getting by with a little help from my friends
Let’s face it, a Mother’s work is never DONE. There will always be laundry, dishes and last minute book reports that need to be done. Or in my case, there will more than likely always be pharmacies to call, doctors to email and insurance folks to fight with.
That’s called life.
Dinner Out
Ashley had a good day at school today UNTIL her vision teacher showed up just 15 minutes before the end of the school day. Ashley may not be able to tell you exactly what time it is, but she knows her daily schedule down to every last minute. School is over at 3:15 pm, and…
Please, spare me the sympathy
I was at an event this weekend where I met some other bloggers. Several times, I was asked what my blog is about, and what Max’s special needs are. “He has cerebral palsy,” I would say, matter-of-factly. “I’m sorry,” they’d inevitably respond. This is the whirling dervish of thoughts that goes through my head when…
Sending up an S.O.S.
So often we are focused on our own children and their struggles that we forget about the struggles of others. Guilty. And most often, we forget about keeping our own lives balanced. I came across this video by one of my favorite motivational speakers, Renee Bondi, and I wanted to share it. Here is a…
Time to Clean the Toilet, Sweetums
Disciplining a teenager is difficult for me, especially when the teenager needs lots of discipline. I don’t believe in corporal punishment so hitting them is not an option (that and the fact that they are bigger than me). Confining me to my room was a technique used by my parents, but in this day of…