Monthly Archives: May 2009

A Lid For Every Pot

While the guys were away visiting, an old friend of mine from the city we used to live in and her husband came to dinner. They’d just dropped off their daughter at camp for a week. There is a fabulous summer program up here in the mountains for kids and adults who have moderate disabilities…

Continue Reading »

The trickle down effect.

Ivy was denied the three weekly Intragam and so her meltdown week continues. I’m disappointed. Mostly for Ivy because she feels awful for over a week before her next infusion and she just doesn’t know why. Mostly for Ivy because for that week before she has her next IVIG she starts to pick up all…

Continue Reading »

Now I Lay Me Down To Sleep

Caring for a medically fragile child is one of the hardest things parents will ever face. Although keeping up with medicine schedules, feeding schedules, and all the required doctor and therapy appointments can be tough, the most difficult thing, in my opinion, is being afraid to sleep. Sleeping might mean that you miss the seizure…

Continue Reading »

Field Trip

We wait in line, you and me, for our turn on the ride. You talk about your “adventure” and what is happening in your imagination, right now, as you cope with this change in your day. You talk loudly, with inflection and feeling, so that others around you pause to hear what you have to…

Continue Reading »

SEW: Feeling Better

(This is a quick fill in for Tiff and Ivy, who hopefully will be back next week.) After a week of using his pillow to lay his fevered head on, our Brave Hero is finally feeling better. Mom can finally exhale. And maybe get some sleep. Come and join in the fun at Special Exposure…

Continue Reading »

Photographing Children [with Special Needs]

You are a parent with an adorable kid [kids] and a digital camera in your hands. You are capturing every waking, and often sleeping, moment possible…yet the images captured are not exactly as envisioned at the moment of click. If you are the parent of a child [children] with special needs, you understand there are…

Continue Reading »

Try This Tuesday #43: How to address lying – by adults???

Welcome to this week’s Try This Tuesday. For details on how to participate, please check out the welcome post. I actually have a couple of related situations that I would like some input on from other parents. It appears that twice in the last month my son has been told an untruth by the adult…

Continue Reading »

The art of talking about your child

Oftentimes, people who don’t Max that well—coworkers, neighbors, acquaintances—ask questions about him. I’ve mastered the art of the succinct, upbeat response. Here’s how it usually goes: They say: “How is Max doing?” I say: “Well! He’s really coming along.” What I really mean: He amazes us each and every single day because he’s doing so…

Continue Reading »

Blog Review

Hi de ho there! “Maddy” here, an interloper. I’ve nipped over from “home” to do mischief at 5 Minutes for Special Needs Moms. Now that everyone is cowering in their shoes it’s time for me to turn my attention to my next victim, the venerable if not necessarily veritable, “Tabitha” who blogs over at “I…

Continue Reading »

Structuring the HOME for Children with Special Needs, Part III

Cindy Golden, OMAC Consulting www.omacconsulting.blogspot.com   This is the 3rd part in a series on Structuring the Home for Children with special needs.  The last post we focused on organizing a kitchen for an older child or one with fewer needs and this post will focus on children with more significant needs.    Our students…

Continue Reading »