Monthly Archives: August 2011

Not All Diagnosis’ Fit in the Same Box

The problem with diagnosis is…. It puts people, individuals with likes and dislikes, quirks, needs, abilities and disabilities in a box. Cutting out their very individuality that makes one person differ so entirely from another. The differences between them no longer seen. In essence treating one person with an ability within a diagnosis the same…

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Hope Comes Through A Hole In My Wall

Anyone else living in a trashed house? I do. It’s the kind where rays of sunshine pour over beautifully painted walls – well, mostly, except for the place where our 8 year old kicked a hole through one in a rage months ago. Or where doors are missing from being slammed through frames. Or where…

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I Need To Stop Making Promises!

We aren’t talking about major promises here. If we were, I would work as hard as I could to stay true to my word. I’ve blogged a lot about my friend Nena here in the past. And the last post I talked about her in, I had said that I would try not to talk…

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Public- or Home-School? That’s the Question!

Kindergarten Graduation You might have read that we played hooky from Summer School this year. As a result of that post, a few parents of children with special needs have congratulated me on my first–but perhaps not last–foray into home schooling. I’ve got mixed feelings about this… See, I’ve always been a proponent of the public school system……

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Living with Hypotonia

One of the ways that Precious’ disability presents itself is through her low muscle tone, also known as hypotonia. When Precious was first born, her hypotonia showed itself through her general floppiness, and in the way she laid on her back with legs and arms akimbo, like a frog. She was really hard to pick…

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New year to begin…

I know what your thinking…NEW SCHOOL YEAR? How many days till school starts??? I have a friend that started counting the minute summer started. I enjoy our homeschooling time together. I love the beginning of a new year…the goals for the year, the dreams of what you want to work on, the reality of what…

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A Request…

Today, I am asking you to stop what you are doing. Go send your love and thoughts to Tammie… Parker is having his heart cath today. This is big. Bigger than any words I could write here. These are the days when being a SN mom is not so fun.

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Conversational Carousel

The other day I took the child to a nearby amusement park. We enjoyed our mommy-daughter outing with one of her friends and her mom. One of the rides we most enjoyed was the 100 year old carousel. It was truly beautiful. The horses had hair tails instead of painted ones, and there were even…

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Our Relenting HEAT WAVE

Seems that no matter where you live across our great country, this summer heat has been unbearable! Temps in the 90s and heat index in triple digits. Medically fragile children and adults need to take special care.

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Trusting Our Kids to Live Their Strengths

Sometimes, I’m amazed at my own craziness. Like when I plan to go to the store at the last minute before dinner with hungry kids and a child with SPD who forgot her jacket. Or when I go hiking in flip-flops…. “Mom! Are you okay?” My 4 year old yelled over the rushing water that…

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