“Mom, I’m calling you about something important,” Matthew said earnestly, “listen very carefully.” I could almost feel his brown eyes glaring through the phone – I could see his eyebrows framing them with concern. “I very seriously need to move in with a girl for a very good reason,” he continued. Matthew had just moved…
I Wanna Hold Your Hand (among other things)
I’ve got birds – I’ve got bees – what I don’t have is a teenage daughter who understands her sexuality. But that teenage daughter is longing for those things she is having trouble labeling. My 18 year old daughter, Jessica, is significantly intellectually disabled. But her hormones work just fine, and she is trying to…
Today I…
Have a meeting with Spiff’s team at the high school. My post will be about that meeting, because I’m sure it is going to be a doozy. So stay tuned. Watch this space. I love it when people don’t read IEP’s. It makes my job (and my son’s) just that much harder. Sigh. Back with…
Special Exposure Wednesday.
My new fave of The Secret Seven. Got a favourite photo to share? Why don’t you join in this Special Exposure Wednesday. Please remember your comment love at each link you visit. Also blogging at Three Ring Circus
it will never all make sense
That’s my mantra. My concrete brain wants to connect all the dots to my daughters. I have a control-freak hiding deep inside that whispers, if you know why, then you’ll know how to make her all better. Then I open the fridge to make breakfast and see this: My kids don’t make any more sense…
Those flashes of sadness
I was at a local event over the weekend and spotted Ethan, a kid who’s the same age as Max, six. They were born days apart. Back when they were babies, his mom and I chipped in to hire an expert to teach us baby massage. She came to our house and we placed the babies on the…
Childhood Cancer Awareness Month
Did you know that this month is Childhood Cancer Awareness month? Kids all over the world are suffering from cancer. Hospital floors are filled with children with bald heads, going through chemotherapy, bone marrow transplants, and surgeries as they literally fight for their lives. Before 2007, I had no idea. I knew it existed of…
Love and Praise for Parents of Medically Fragile Children
This is the message I found on my answering machine Monday morning. “Hi mom, it’s Andy. Just wanted you to know I have the swine flu, but don’t worry.” This was the same day that I learned that a student at Cornell had died from the H1N1 virus. I called Andy, who is a senior…
Should You or Shouldn’t You?
My children and I were shopping at one of the big box electronic stores this weekend when I saw a lovely family – Mom, Dad, and two teenaged children. One of the children had Down Syndrome. What gave me pause was that Mom was walking through the store holding the hand of the teenager with…
Support Group
I have a great support system in my life. Really, we do. It is made up of family, good friends, best friends, teachers, neighbors, co-workers and well, you. Thank you to those who see my son in public and don’t judge his mannerisms and then in turn judge us. Thank you to family who loves…