When Jack was first diagnosed, I was horrified. Depressed. Had major anxiety attacks. Cried for hours. Somewhere around Jack’s second year, I felt myself changing. I no longer longed for the green field across the fence–I was OK with the patchy grass holding one perfectly beautiful flower in my own yard. So, I started writing…
World Changer
All of those letters, primary diagnosis, possible co-morbid conditions, what does it all mean? This form to fill out, those contacts to call, these questions to ask, those books to read. This meeting to have, those services to request. It was back to school special parenting style.
Special Exposure Wednesday – Poor Woody
Poor Woody, he’s been relegated to the toy bin: At least he has the dogs for company. Share what you managed to capture this week. Please spread the comment love around. Thank you.
On Validation…
So, we are finally settling in and making life work. Part of that means we had to get all Jack’s records and get them transferred to new physician’s here. That was a ton of fun. (rollllllls eyes) However, the most interesting thing happened. We took Jack to his new GI on Friday and she… listened….
Getting a Grip
I probably should know better than to write a post late at night when I’m barely still awake and most of my thoughts are trending toward a rather negative vein. However, if I procrastinate (again) I’ll be posting late (again) and I’m tired of that trend, too. Just be aware there will be no sugar-coating….
Special Exposure Wednesday – He Passed The Test
Remember the self control test? Well, here he is opening presents on Christmas day: Guess you can say he passed, 🙂 Share what you managed to capture. Please spread the comment love around. Thank you.
Rebuilding Life – An Interview With a Pro Who “Gets” Us
You know those stories we all tell about our kids’ care team professionals who don’t have a clue? The ones who clearly don’t know at all what life is like outside their 15-minute office visit with our child and her challenges? My guest today is NOT one of those professionals! Harriet Cabelly is a Life…
I Brake for School Bells
Somehow I had the mistaken impression that the child would be happy to return to school. We had a pretty good break (stomach flus aside) and she had asked when she would get to go to school again. GET to go. I thought that was a good sign. Uh…no.
Special Exposure Wednesday – Sorry
Sorry, we’re still not back to par yet. Hope you’re not in the same boat as us, 🙂 Share what you managed to capture this week. Please spread the comment love around. Thank you. *photo credit
A Homework Miracle At The Kitchen Table
She looked up at me, wrapped tight in the blanket that was holding her together. Thirty minutes she’d been yelling at math problems on crumpled paper in front of her. Pencils strewn around, nerves frazzled. Now she sat quiet. Smiling with those big brown tear-soaked eyes. Oh, she was so proud of her work! She…