Written by Natalie: Every parent to a special needs child has that story. You know the one, the one we never wanted to have. The diagnosis story. As an introduction, I thought I would share ours. It was the first of many diagnosis stories to follow. So, how was my daughter Mandy diagnosed? The answer…
Where We Are.
Four months ago, Ivy went for an echocardiogram because she had a fast heart rate and a murmur. It was discovered that she had two nodes in competition for the sinus rhythm. Along with this they also found some pulmonary hypertension. It was not too bad, just a little high and after much discussion it…
Disabled Enough
One day before the Loma Prieta Earthquake of 1989 shook the San Francisco Bay Area, I took my three- year-old son Matthew for testing. He had stopped talking, and I was anxious to get him back on track. In the 17 years that followed, there were many more tests, a diagnosis of autism, a frantic…
Say What?
Have you ever been sitting in an IEP meeting or some other school-related meeting when someone from the school staff says something so utterly ridiculous that you are left speechless? I read an article in a local newspaper yesterday on the subject of advocates assisting parents in the special education process. One of the advocates…
This, That and a Few Other Things
I don’t know about you, but the amount of recalls lately has me more than a little bit concerned. Uh, peanut butter anyone? If you scroll all the way down on this site you will see a list of current peanut butter recalls. The folks over at Parents.com must have been reading my mind. Their…
Special Exposure Wednesday.
Ivy’s newest ‘disease’… self named “sticker pox”! Got something funny to share? Why don’t you join in this Special Exposure Wednesday. Please remember your comment love at each link you visit. Also blogging at Three RIng Circus
This mom has special needs too
I’m flying out this week for a blogger conference. It’s my first one and that makes it exciting. It’s also my first trip away from my children and THAT makes it even more exciting. It’s my first time being away from Peyton for an longer than a day since she was diagnosed…and THAT? Is both…
Try This Tuesday #29: Communicating with Teachers and Paraprofessionals
If you’d like to join in but aren’t sure what to write about, try the topic suggestion for this week: Communicating with Teachers and Paraprofessionals – how do you create and maintain a good relationship with your child’s team? What methods seem to work best for you? Our Communication Plan When my son was moving…
GFCF Banana Bread
I love bananas! Everyone in the house usually eats one per day, which means we typically have an abundance of this gem of a fruit in our home. Occasionally we have bananas sitting around in the kitchen that my kids will not eat because the kids think they’re too ripe. What do you do when…
The need to seem “normal”
Hi, everyone. So, the wonderful pediatric neurologist I mentioned in my post from last week on doctors who have given you hope did e-mail me back. He was very happy to hear that Max was doing so well. I was really glad I’d gotten in touch—he deserved to know. This picture is from Friday, a…