Autism: Living with the looks

I was at Barnes and Noble the other day and believe that I witnessed an autistic meltdown. A father was in line with his teenage son when the woman in front of them sneezed loudly. The noise took the teenager by surprise, and he covered his ears and yelled “too loud, must leave, too loud”…

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Insensitive

As many of you know, I have a 19 year old daughter named Jessica. I adopted Jessica when she was 9 years old. She had spent most of her life in foster care, and along the way was both physically and sexually abused. In addition, she was diagnosed as an infant with brain cancer. She…

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Special Exposure Wednesday.

A rare moment: Mal posing for the camera! Love this photo of our little leprechaun. Got something to share? Why don’t you join in this Special Exposure Wednesday. Please remember your comment love at each link you visit. Also posting at Three Ring Circus.

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Preschool Decision

My husband and I are pretty conservative–I’m not talking about politics (I almost never am)–but just our general life decisions. We prefer things cooked from scratch–we don’t even own a microwave. I stay at home and my husband goes out and earns the money. Even before Charlie was born, we thought that I might end…

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That “You think YOUR life is so hard?” feeling

This weekend, I visited a relative who may or may not be my sister, and I pretty much felt like I could smack her. She started it! She started it! (To quote an oft-repeated refrain from childhood.) She kept stressing out. First, she got irritated at her husband because he was in the kitchen preparing…

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Torn

I have two children. My eldest is nearly 11 (although, she’s really 10-going-on-70, and I’m totally not kidding). My youngest is nearly 4. They have birthdays a day apart. They have been virtually inseparable since we adopted Jack. Sure, they have their random hissy fits, but for the most part, you’ve never seen sibling love…

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Being Schooled

So, I’m new here. I really appreciate you having me, listening to me wax poetic about raising a child with special needs. I have a beautiful baby boy that we affectionately call “The Great Potato,” who graces our lives everyday with his beauty and wisdom. Having a special needs child can sometimes make me feel…

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Birds of a Feather: The Special Needs Lunch & More BlogHer highlights

I left my 2yo medically fragile son for five days…count ’em five days AND nights, to attend BlogHer’10 in New York City. It was business, it was pleasure, it was exhausting…you name it – I felt it. Mostly I felt terribly guilty about going, but given the awesome opportunity I just felt I could not pass it…

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Where Did You Go?

If you leave me now You’ll take away the biggest part of me Ooo oh, no, baby please don’t go And if you leave me now You’ll take away the very heart of me Ooo oh, no, baby please don’t go. Ooo, oh, girl, I just want you to stay (Peter Cetera, 1976) When Ashley…

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Special Exposure Wednesday.

Humble apologies for no post last week, we were, unfortunately, back in the  hospital with the girl and after becoming septic for the second time in a month, the port was removed and a PICC line placed. On the 19th, it will be a reversal, where the PICC will be removed and a new port…

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