Looks like we’ll be changing insurances this open season. Three years of hand and foot orthotics have brought us to Bear’s lifetime maximum benefits for durable medical equipment. I hate that they are not covered separately. There is not cap for therapy because she’s under 6, why is there a cap for her therapeutic needs? It’s so frustrating because we really like this insurance company….
What’s up with the overpriced “special” toys?
Last week on my blog, I started a Special Needs Swap Shop. I offered up a $1600 PONY Gait Trainer that Max used when he was little (someone took it). Then I invited readers to send me e-mails mentioning what sort of stuff they were looking for, and to let me know what sort of…
Questions that hurt, comments that help
You’re sitting there minding your own business when BAM, some friend, relative or stranger asks you a question about your child that levels you. These questions would not be in the “well meaning” category. 8 most annoying questions I’ve been asked about Matthew. 1) Will he ever live on his own? 2) Don’t you feel…
Say ‘Ahhhh’
For the most part, I have been very blessed to find medical professionals who do an excellent job of providing care. I can say without a doubt that most of the doctors and other healthcare staff we see have never treated a child with my daughter, Ashley’s, unique combination of disabilities. But they are doing…
Special Exposure Wednesday.
This girl is so excited. It’s finally November. Only 26 more days until she and her brother turn 4! Got a photo to share? Why don’t you join in this Special Exposure Wednesday. Please remember your comment love at each link you visit. Also blogging at Three Ring Circus
IEP tips from moms
The comments from my post last week were so fantastic, I must share them with everyone. Here is a compiled list of tips for IEP meetings: Walk in with confidence, knowing who your child really is Never go alone (even if the other person is quiet and take notes) Be positive Stay focused on the…
I don’t enjoy feeling like a “good cause”
Every year, a local branch of the Embassy Suites hotel chain throws a Halloween event for the kids in Max’s school. They go all out—they pick up the kids by shuttle van, decorate different rooms where costumed staffers hand out candy, offer a great buffet lunch and also have a room with pumpkins for the…
Kind of like a trip to Holland.
As parents of children with autism know, there are certain obsessions that grip our kids out of the blue that won’t let go. Some of Matthew’s past obsessions that come to mind are wheels, sprinklers(but only the ones that go in circles), airports, balloons, teddy bears, putting diapers on teddy bears-the list goes on. With…
This Little Piggy Stayed Home
I am a worrier. I think that just comes with the territory when you are the parent of a child with special needs, especially a child with significant medical issues. But nothing has consumed me with worry as much as the H1N1 virus. I worry each year about the seasonal flu, and my family was…
Special Exposure Wednesday.
Did you know? There’s a little blue fairy in my garden. We don’t celebrate Halloween in Australia but dressing up is a daily occurance. Got a photo to share? Why don’t you join in this Special Exposure Wednesday. Please remember your comment love at each link you visit. Also blogging at Three Ring Circus