Precious was born with hypotonia, or low muscle tone. She was so floppy when she was little she laid on her back with her legs in frog position for the first several months of her life, and she couldn’t sit up until after she was one year old. She walked around 22 months. She still…
Tag Archive: developmental disability
Giving Back
The first few years in Precious’ life were pretty hectic. During the first year, she sometimes had 4 appointments a week, and I had a 2 year-old and a 3 year-old at home with their own activities and appointments. Now that Precious is in the Primary Special Needs class for next year, and the other…
Happy Mother’s Day
When I became a mother in 2002, I truly felt transformed. The birth of my son was an empowering experience; primal and intense and painful, but giving birth to him and becoming a mother for the first was truly the most incredible moment in my life. Having my second child in 2003, at home, and…
Respite
Last weekend being the long Easter weekend, my sister-in-law had invited me to go shopping in the States. The exchange rate is in our favour right now (I’m in Canada) and the prices at the outlet mall we were planning to hit are always good. My son who turns 9 today started going on a…
Connecting
DH and I met a lovely woman at the support group we attended last fall. Her son is similar in age to Precious and has a similar diagnosis; mild developmental disability. I emailed Steph a month or so ago and she, her husband and her son came over and hung out with our family for…
When she won’t hug Grandma
We flew 8 hours with 4 kids and umpteen bags across the country to visit Grandma. Within 2 minutes they’d already hurt her feelings. It’s always been stressful to balance the expectations of extended family and the needs of my two older girls, adopted as toddlers from foster care. Both their difficult history and their…
It’s Official
After 5 years, innumberable doctor’s, therapist’s and specialist’s appointments, blood tests, x-rays, MRIs and on and on, Precious is no longer “developmentally delayed with a suspected developmental disability” but is officially developmentally disabled (aka ‘MR’) and we have the psychologist’s report to prove it. I wasn’t surprised when I heard the results, but I cried…