Tag Archive: brain damage

Road Trip with Grandma

Last time we offered to do this I felt like I had just walked off a cliff. We are stretched thin just keeping up with our kids, so adding Grandma to the mix is daunting. If it were just caregiving I think it wouldn’t be quite so hard, but she is angry at us a good bit of the time.

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What a Difference

I’ve had emotional whiplash all week. Grandma is visiting us this week. In case you don’t know the significance of those words you can read the worst part of it here. I’ve written about our struggles with her before. Turns out she does not have Alzheimers or dementia, per se, but the neurological damage she…

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Stop Staring at the Screen

STOP LOOKING! …at that screen I tell myself as I watch the squiggly lines of blue, green and red make their mark on the EEG monitor. It’s not like it’s going to tell me anything. It’s not like I’m going to stare hard enough, long enough, likely drying out my contacts…and decipher electroencephalograms on this…

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How far he’s come. How far we have to go.

She wailed that B had her popcorn. Popcorn being used loosely as the container that once held popcorn kernels, gladly accepted by her at its end as an addition to her kitchen belongings….this thing that B was handling in front of her (the nerve) with an item of his already stuffed inside. To keep my…

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My Angel

I knew that my body was giving everything to this little person growing inside me. I knew my life would never be the same; that our lives would never be the same. There were no words to express the happiness I knew my belly contained. I knew that this little being was my angel; my…

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Reflections In Spring…We’ve Come A Long Way

How are we doing? It’s on my mind. Not for any particular reason except that spring is around the corner, and this is the kind of thought process I go through each spring. You see, spring is a time of renewal and while others clean, which I might find a way to get my hands…

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Worrying About the Consequences of Injury Incidents

Enjoying the warmth of the moment, the neighborhood is outside. A few adults finding conversation, a flock of young kids finding themselves energized in a game of kick ball. It’s safe, it’s warm, friendly and fun. Until… I like to say C is our kids’ favorite toy. He can play any game with enough zeal…

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The Crash Test Dummy Family

All week the plan was to tell you a humorous story today about the boys’ not-so-special language. Humor is scarce right now. As I write this the pain and tears are fresh from having been verbally and physically attacked by my thirteen year old son. Followed by his complete emotional collapse in my arms while…

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The Hush Hush Disability

It is a longer post than I normally write, but for the sake of children -born and unborn- please take a few moments to read. Next week, I promise to write more lightly about my boys and the new language at our house…and it is not Spanish or French.*gasp* Do you know that you may…

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