Written on
March 15, 2010 by
Ellen
“OK, I know he’s got microcephaly, but don’t you think all that hair hides it well?” “I’m sorry, I’m not convinced you know what you are talking about.” “The other day he grabbed one of my nipples while he was breastfeeding, I thought it was a good sign he’s going to be able to use…
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Written on
March 8, 2010 by
Ellen
I’m at a birthday party with Max at a friend’s home. It’s really crowded and Max is darting around, uneasily. I’m trotting behind him in case he loses it but keeping a safe distance because I don’t want to baby him. As I follow Max, I notice a few moms staring at him as he…
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Written on
March 1, 2010 by
Ellen
Sunday night, we went out to dinner with friends. We tried a local hamburger joint we’d never been to before. I was worried about how Max would deal. He does OK in familiar restaurants, but as I’ve mentioned he gets unnerved in new places. We got there. Max tried to run out. We decided to…
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Written on
February 22, 2010 by
Ellen
So, here’s the thing about my little boy, Max: He doesn’t yet get social boundaries. Like, he doesn’t understand that you’re not supposed to go up to people and pat their shirts if you think their shirts are a nice color (purple, his current obsession). It also became clear to me recently that he has…
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Written on
February 15, 2010 by
Ellen
Max’s school physical therapist left a voicemail last Tuesday on my cellphone saying that he seemed sluggish, not like himself and a little uncoordinated. I’m not good about checking my cell voicemails, and so I didn’t even know she’d phoned till I got an email on Friday from his occupational therapist recapping that he had…
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Written on
February 8, 2010 by
Ellen
The scene: McDonald’s. My husband just picked me up from the airport (I went to the Blissdom conference in Nashville), and we’re eager to down lunch. We walk in, and Max makes a beeline for a corner table he likes to sit at. Max has this thing about tables at restaurants: At the handful of…
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Written on
February 1, 2010 by
Ellen
• I have moments of absolutely insane worry that include things like, “If terrorists blow up our state, where am I going to get seizure medication?” • I sneak omega-3 oil into Max’s Wheatina and wheat germ into his chocolate pudding and when he looks suspicious I make it like everything is OK. • I cannot…
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Written on
January 25, 2010 by
Ellen
I’m having one of those days when the “whens” are on my mind. By that I mean: When is Max going to regularly use both his hands? When is he going to pick up more words? When is Max going to toilet train? When will he feed himself more regularly? When will he dress himself?…
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Written on
January 18, 2010 by
Ellen
When I was a little girl, I used to love making stuff—artwork, paintings, costumes, popsicle-stick birdhouses, pottery, you name it. Now, when I look at Max struggling to grasp a bulb crayon or thick paintbrush, I sometimes flash back to my own childhood and I get bummed that he is missing out. Then I snap…
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Written on
January 11, 2010 by
Ellen
This weekend, we went to Chuck E. Cheesiest Place Ever. The kids saw a commercial for it and begged to go, and because Max managed to say some semblance of “Chuck E. Cheese” and that was worth celebrating, we went. I so wanted him to have a good time. The thing is, though, it’s pretty…
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