Written on
January 4, 2010 by
Ellen
Yeah, he’s cute. But he sure can try my patience. Before I had Max, I wasn’t known for my patience, let me just say. I am the sort of person who wants things done fast, and wants them done well. Wants that do not exactly go well with having a kid with special needs. I…
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Written on
December 28, 2009 by
Ellen
I don’t know about you, but I’ve gotten a lot more forgetful since having kids. I assume it has something to do with all the information crammed in there. My brain is jam-packed with medical terms and therapy info and doctors’ names and phone numbers and developmental blah blah and you name it. Not to…
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Written on
December 21, 2009 by
Ellen
This is Max feeding himself. It is an awesome sight—for so many years, we had to spoon feed him because he lacked the hand coordination to do it himself. Max still likes it when we do it for him. But he adores sweet potatoes, and he was gung-ho to down a bowlful by himself. Back…
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Written on
December 14, 2009 by
Ellen
My four-year-old, Sabrina, is amusing to listen to pretty much at all times. She’s always making observations; having her around is sort of like having running commentary on your life from a sportscaster. “Mommy, why do you drink coffee? Does it taste as good as chocolate milk?” “Mommy, I’m not putting on my socks because…
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Written on
December 7, 2009 by
Ellen
Yesterday, we had a birthday party for Max, who’s turning seven. I invited all of the students in his class and most of them came. Max’s glee was out of control. He squealed the second he saw one of the kids coming up the walkway, and he didn’t stop the entire party. We hired a clown…
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Written on
November 30, 2009 by
Ellen
I am still shocked and saddened by the news that Anissa Mayhew, one of the writers here, suffered a stroke. I’ve been sending thoughts and prayers her way. It’s gotten me thinking about my own health, I have to say. I spend so much time caring for Max (who had a stroke at birth) that…
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Written on
November 23, 2009 by
Ellen
Ok, not really—it only feels that way. I went to visit Max’s school on Friday to discuss his Dynavox with his speech therapist. My husband and I find it really hard to navigate, and Max isn’t so hot to use it on weekends, either. (At school, he does fine navigating the “classroom” category.) We’re going…
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Written on
November 16, 2009 by
Ellen
• I get excited when Max feeds himself. Then I try to get my husband to clean up the mess. • There’s a family with four kids who lives down the block. Sometimes, when I’m around their kids I think, “Wow, they got four healthy kids….” • I dread progress reports. I mean, yes, it’s…
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Written on
November 9, 2009 by
Ellen
Last week on my blog, I started a Special Needs Swap Shop. I offered up a $1600 PONY Gait Trainer that Max used when he was little (someone took it). Then I invited readers to send me e-mails mentioning what sort of stuff they were looking for, and to let me know what sort of…
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Written on
November 2, 2009 by
Ellen
Every year, a local branch of the Embassy Suites hotel chain throws a Halloween event for the kids in Max’s school. They go all out—they pick up the kids by shuttle van, decorate different rooms where costumed staffers hand out candy, offer a great buffet lunch and also have a room with pumpkins for the…
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