Due to Precious’ intellectual disability, she is moving along her own curve, but the good news is that she is moving onwards and upwards. In order to get some funding for “personal growth and development support” and “family relief and support”, like house cleaning, we have to complete an annual application form for the government…
Category Archives: Developmentally Delayed
Autism:This One Goes to Eleven
Did you ever see This is Spinal Tap? Classic movie with Christopher Guest, Harry Shearer and Michael McKean? Anyone? Anyone? Bueller? Well, if you hadn’t, I’ll fill you in. There is this classic scene in the movie when Christopher Guest’s character shows Rob Reiner (yes, that Rob Reiner) a special amplifier that their band created….
Music at Mary’s Preschool
I have not formally introduced myself. My name is Chaney. I am Mary’s mom. Mary turned 5 in October. She loves music, horses, Dora and going outside. Mary uses a DynaVox VMax for the majority of her communication. She also has a trach and a g-tube. Mary is diagnosed with Arthrogryposis, Agenesis of the Corpus…
Happy Birthday Precious!
Precious turned 5 this week. Her birthday party took place last Sunday. We booked it a local grocery store which runs cooking classes for kids and adults. The kids made pizza with their own dough and toppings, then fruit salad, then cupcakes that looked like reindeer. The cupcakes became their loot bag. While the pizza…
Dear Little One
Sometimes you can’t move forward until you go back, and I have realized that I have skipped so much of my journey with my daughters, just jumping in here without mentioning where I have been. One of my biggest challenges was the transitional time when Zoe was growing into a child with visible disabilities. This…
How Do You Deal With The Holidays?
Yesterday was Thanksgiving day in the US. The day traditionally set aside for visiting or entertaining family and friends, eating boatloads of turkey, mashed potatoes and gravy and all the foods that oddly enough, I don’t find appealing at any other time of the year. For some, it also means watching football all.day.long. For the…
Home for the Holidays
Every year, my larger-than-life family gets together for holidays, just like the rest of the world. I have three brothers and three sisters and their spouses, plus multiple nieces and nephews, which means a gathering with “just us” and it’s thirty to forty people. We used to take turns hosting the gatherings. Used to. As…
Precious
Hi, I’m Beth and I’m thrilled to be posting here on 5 Minutes for Special Needs. I’ve been reading all the posts for the last several years. I have found some wonderful information here and have sometimes passed it along to others, and I can sometimes relate to the authors myself, but I haven’t found…
What’s Wrong With Him?
“What’s wrong with him?” – ask the kids in the playground when my son refuses to play with them. “What’s wrong with him?” – asks my uncle when my son refuses to eat anything but dry cereal. “What’s wrong with him?” – asks my aunt when my son jumps around because there are too many…
Time Discovers Truth
Before I became a mom, I did everything at high speed. My long legs galloped through airports, trade shows, malls, corporate hallways- purposefully propelling toward my destination. I assessed people too quickly, rushed through conversations, and often missed the simple beauty of everyday life. Fast forward years later, when my second daughter Zoe was 5-…