This was originally posted on my blog but I wanted to share it here. I am interested to see how many of you has experienced something similar to this. I am hoping not too many, but sadly, it’s more likely that you have encountered this in one form or another. A few weeks back, my…
Category Archives: Conditions and Diseases
Just What is This “Normal” Stuff Anyways?
normal: adjective. conforming to the standard or the common type; usual; not abnormal; regular; natural. In the Special World we constantly hear about “normal” benchmarks and “typically” developing children. Our children are often measured against the “normals” to get an idea or a glimpse into just how delayed they really are. I know the intent…
Can I Help You?
In the middle of another hectic week we finally had a chance to hang out after school and play on the playground. This is one of my few opportunities to see how my daughter is navigating through the social challenge that the asphalt schoolyard can bring to a kid on the autism spectrum. After a…
Unexpected Snow Days Require An Arsenal
Today is a snow day. I remember snow days fondly as days when the world was wide open. It was a free day to catch up and do whatever my childish heart desired; reading, sledding, throwing snowballs endlessly which would, for me, end up in freezing fingers needing swirls of mildly warm water to run…
If I’m still grieving, how does she feel?
I had tried to promise myself that I wouldn’t write about my best friend Nena or her son Glenn again, BUT, I’m still having a hard time with it. And it really has to deal with grief. If you want to read the first post, it’s HERE. I have to ask myself, if I’m still…
Just Managing
Precious got the flu last week. She started getting sick on Sunday night and missed the whole week of school. I work for a wonderful employer and get 5 days of family-related leave a year. Only problem is, that it goes pretty fast between the number of appointments Precious has, along with the fact that…
I Hate Being Late!
As the bird tweets, we miss a lot of fun activities! That’s because we’re always late to the party… literally! We’ve missed the better half of birthday parties, christenings, the walk down the aisle, the eulogy, the sun. You name it. We’ve missed it. Anyone else having trouble getting places on time since they had…
I was desperate for sleep
Define Sleep: A natural periodic state of rest for the mind and body, in which the eyes usually close and consciousness is completely or partially lost, so that there is a decrease in bodily movement and responsiveness to external stimuli. During sleep the brain in humans and other mammals undergoes a characteristic cycle of brain-wave…
He’s a Little Runaway
Regardless of the fact that the title of this post conjures up images of bad eighties Bon Jovi music, Ian is a little runaway. He’s an eloper. He tends to “wander off”. But only at home. Ian has never, ever been content being boxed into one space for too long. He would leave his room…
Where’s the Line?
I realize I’ve been writing here for several weeks now without really introducing myself or my daughter. I haven’t written much about her specific challenges or my responses to them. I guess I expected all of this to come out more naturally, but there’s a hang up — which I’ll explain shortly. Our daughter is…