10. Someone stares at your kid funny and you snap, “Bite me!” 9. You put your child’s braces away…in the fridge. 8. You start fantasizing about snorting your child’s medication. 7. Your most meaningful conversations in life are with the speech/occuptional/physical therapist. 6. You start fantasizing about making your husband snort your child’s medication. 5….
Category Archives: Conditions and Diseases
Why I am dreading the tracheostomy
A couple of days ago, we had our followup with our ENT. Hannah has been having some breathing issues lately, and I had brought them up to her since our pediatrician and occupational therapist felt that she had airway issues. The ENT did a laryngoscopy and found that Hannah had vocal cord paralysis. She would…
The best therapy that’s not therapy
Max absolutely loves being in water so much, my husband and I have joked about buying him a water bed. So he’s in heaven when he’s in the pool. Bonus: the pool toys give him all sorts of opportunities to work his fine-motor skills. As demonstrated here! Max has been getting physical and occupational therapy…
How do you make sure other kids play with your child?
We spent this weekend with friends who have three girls, ages three, five and seven. When Max was little, it was hard for me to spend time with friends and their kids—I was always comparing him to them, which inevitably made me feel bummed out. I don’t do that anymore, but lately I’ve been grappling…
The big “G”
When a baby is born and for the first time, you hold that sweet little thing, you hold them close to you, breathe them in and give your heart away. Never in your wildest dreams do you stop and wonder if there is anything wrong, what the future will hold for this little person. In those first few…
Planting the “special needs” seeds
Because Hannah’s disease progression is slower than was originally expected (thank goodness!), we have been able to slowly plant the seeds of Hannah’s illness to Ethan (8) and Abigail (5). We made a very strong point never to say she is “sick” but that she has a “disease.” We don’t want them to connect being…
A Bill of Rights For Parents of Kids With Special Needs
I put this together over at my blog with input from readers, and wanted to share it with all of you here. A Bill of Rights For Parents of Kids With Special Needs We, the parents, in order to form a more perfect union, establish justice, insure tranquility (and sanity) and promote the general welfare…
A Moment of Silence For Our Dryer Please…
It finally happened. We knew it was coming. We pretended like we didn’t notice, but we knew. We’d seen the signs for months: Shutting itself off mid-cycle, taking in excess of ninety minutes to dry a load of clothes, entire outfits that suddenly went MIA along with countless single socks, the largish hole that appeared…
Micromanage or bust
For the last week I’ve been giving Ivy her intra venous antibiotics. One is a slow push and the other is a pump that infuses the medication over 24 hours. I clean the area and flush the line. It’s been great at home. I set it all up. Ivy knows the order they go in and…
Do you give your kids chores?
I’d honestly never thought about giving Max chores, until a recent conversation on an e-loop I belong to for moms of kids with cerebral palsy. One mom whose son is able to crawl on the floor lets him help sort laundry and put his toys away. She was planning to have him help her maintain…