It’s the night before surgery, and the house is a wreck. Tristan is sleeping but the bag is not packed. I’m on the internet, Steve’s watching t.v. We’re both in denial that it’ll soon be here. Early to rise, to arrive at 6:00, not looking forward this, I feel sick at the thought. I think…
Category Archives: Day In And Day Out
Pee-new-moan-ya
Jack spent last weekend feeling rough. Spiked a fever, had snot trails following behind him…you know. I took him to the doctor on Monday. Our pediatric practice has 6 physicians. There’s only one who I refuse to see—because I think he’s a self serving, pompous jerk. Guess who was the only one there on Monday?…
Week of Lasts
Monday was the last day I could take the twins to preschool and run home for two hours of uninterrupted work at my desk. Yesterday was the last day of phonology group therapy for my boy…until the Fall. Today is the last day of preschool – a class picnic that moms and dads attend. Tomorrow…
Teachable Moments
Discipline is the least favorite part of parenting. And for special needs parents it can be especially challenging. Yet without established boundaries, even disabled children will become progressively more difficult and struggle to fit into society. An approach I use is to seize the opportunity presented by “teachable moments”
Our Bipolar Happy Hour
It’s always the same. Like Bill Murray’s movie, Groundhog Day. It’s the same in our home every single day, no matter what we do, what medications we try, what therapies we employ. My 9 year old just lives on the relentless Bipolar mood roller coaster. Every. single. day. Every day: …I wake her gently, quietly……
Birthday Parties Stress Me Out
There. I said it. I read here earlier this week about birthday parties. That made me think how much I get stressed worrying about birthday parties. In January, our oldest daughter turned 4. Lauren had decided she wanted to go bowling. But on one condition. Jillian HAD to be able to participate. (Even though they…
A little clumsy
Precious was born with hypotonia, or low muscle tone. She was so floppy when she was little she laid on her back with her legs in frog position for the first several months of her life, and she couldn’t sit up until after she was one year old. She walked around 22 months. She still…
Dream Night at the Zoo
Our local Children’s hospital and Zoo partner up to have a “Dream Night” the first Friday in June every year. This event is by invitation and allows family oportunities that don’t happen every day. It’s a night for Children with special needs get to feel special. Families get to go & not have to answer…
Birthday Parties
We want our children to be invited. We are sad if they are left out. But as Peanut gets older, the birthday parties are getting longer and more intense. For example, Peanut has been invited to three former classmate’s birthday parties for June. I assume all these children are turning 7 but some could be turning 6….
The ThiRd Rail
I’m still trying to figure out twitter. Can’t decide if it’s really useful for me or not. I’m trying out HootSuite which makes it more accessible, but still kind of overwhelming. Anyway last night as I was scrolling through the most recent tweets two words jumped out at me. Perhaps they would have jumped out…