Bear’s IEP went off without a hitch. I am very thankful for the wonderful team supporting my daughter. It was comical to see eight adults sitting in kiddie chairs around a tiny table flipping through 32 pages of goals. It was the shortest one so far. We were done in less than an hour! We…
Monthly Archives: November 2009
Even more special needs Mommy confessions
• I get excited when Max feeds himself. Then I try to get my husband to clean up the mess. • There’s a family with four kids who lives down the block. Sometimes, when I’m around their kids I think, “Wow, they got four healthy kids….” • I dread progress reports. I mean, yes, it’s…
The Ugly
I’ve always wondered where the phrase, “The good, the bad, and the ugly” came from. It always seemed negatively skewed to me. I mean, why can’t it be, “The great, the good, and the bad?” Or even, “The great, the good, the bad, and the ugly.” Those seem more optimistically balanced. Then, my son turned…
Loss of Innocence
Whether it was during pregnancy, at birth, or some time after, we all remember the moment we first knew. Here is my story, adapted from a chapter in my book. I remember the first time I noticed that my first born son, Matthew, was different. He was about a year old and we were at…
Ramblings of a Fevered Mind
I tried, really tried, to come up with a good and interesting post for today, but most of my family has the H1N1 flu and I just can’t seem to focus my mind enough to write. So I decided to share some of the random thoughts that have been running through my mind. For instance,…
Special Exposure Wednesday.
Wagon rides are the best! When you are little and you get tired easily there is nothing better that having your big sister pull you in a wagon. Got something special to share? Why don’t you join in this Special Exposure Wednesday. Please remember your comment love at each link you visit. Also…
Of PPOs, DME and AFOs
Looks like we’ll be changing insurances this open season. Three years of hand and foot orthotics have brought us to Bear’s lifetime maximum benefits for durable medical equipment. I hate that they are not covered separately. There is not cap for therapy because she’s under 6, why is there a cap for her therapeutic needs? It’s so frustrating because we really like this insurance company….
What’s up with the overpriced “special” toys?
Last week on my blog, I started a Special Needs Swap Shop. I offered up a $1600 PONY Gait Trainer that Max used when he was little (someone took it). Then I invited readers to send me e-mails mentioning what sort of stuff they were looking for, and to let me know what sort of…
Questions that hurt, comments that help
You’re sitting there minding your own business when BAM, some friend, relative or stranger asks you a question about your child that levels you. These questions would not be in the “well meaning” category. 8 most annoying questions I’ve been asked about Matthew. 1) Will he ever live on his own? 2) Don’t you feel…
Say ‘Ahhhh’
For the most part, I have been very blessed to find medical professionals who do an excellent job of providing care. I can say without a doubt that most of the doctors and other healthcare staff we see have never treated a child with my daughter, Ashley’s, unique combination of disabilities. But they are doing…