Dear Government of the State of _________, I recently had a visit at the Social Security office. See, I was there to get my son denied SSI, so we could apply for the Medicaid waiver. We waited in line for 2 and a half hours. With a feeding pump. When our name was called, the…
Monthly Archives: October 2010
“Fair”ness
I often wonder why it is that some people are just normally respectful and accepting of people with disabilities, and others act as if they will ‘catch’ something if they get too close to a child in a wheelchair. My family and I visited the State Fair yesterday, and I saw many of both types…
Special Exposure Wednesday.
Sometimes all you need is love. Got something to share? Why don’t you join in this Special Exposure Wednesday. Please remember your comment love at each link you visit. Also posting at Three Ring Circus.
Does your husband spoil your kids? Do you?!
I am always grateful to my husband for taking care of the kids when I’m doing some blog-related activity, like this last weekend when I did a workshop at the Blogalicious conference about blog writing. That said, he is a total marshmallow when it comes to the kids and their requests. Dave took Max to…
Changes
4 years ago….October 6, 2006…our life changed forever. A woman signed her rights away, and doing so, gave us the gift of a son. By the time he was 1, he had more surgeries than most people have in their lifetimes. He was therapized, terrorized, and traumatized. We see more doctors than I care to…
Do Unto Others
A few weeks ago, my cousin posted something on Facebook that had been making the rounds. It was a simple note from a doctor (real? fake?) basically stating that this doctor was against health care reform because the problem was not health care issues but the fact that Medicaid is a diseased program, that everyone…
Next Time, Ask
Last Saturday I attended something billed as a ‘Autumn Institute’ for families of children who are deaf or hearing impaired. This ‘institute’ was held from 9am to 4pm at one of our local parks and was touted to have consultants from our state Department of Education, our state’s deafblind project, the Department of Rehabilitative Services,…
Special Exposure Wednesday
Her smile makes the outfit. Happy Ivy days make my heart sing! Got something to share? Why don’t you join in this Special Exposure Wednesday. Please remember your comment love at each link you visit. Also posting at Three Ring Circus.
school is at home now
“She’s above benchmark in all her skills,” said the school psychologist when she was evaluated at the beginning of last year. I know the school staff surely thought I was nuts. “She doesn’t appear to stick out from the rest of the class behaviorally,” from the school OT, after a 10 minute in-class observation. Then…
A Friend’s House
Next week I will be heading off to the very glamorous Las Vegas. This is not like me at all. I don’t like to fly, I don’t like to travel, but here I am, heading off to Sin City in the middle of the week. Not to worry, I won’t be getting into any trouble…