With J’s ‘improvements’ rapidly sliding down hill with the more time that passes between his last IVIG treatment and the present, we’re headed back down the road of massive meltdowns. Some of these are from our own doing. Case in point: We headed to a local large store for FREE Santa photos. We left early…
Santa Visit
Usually some friend invites us to a Santa event sponsored by their employer or business and we go to that. We didn’t get any invitations this year, so I figured we could just not mention it and move along. Not so fast there. The child insisted that we needed to go – all of us – to see Santa and make sure he knew which presents to bring.
Special Exposure Wednesday – Merry Christmas
While I respect that not everybody celebrates Christmas, we do. So from our home to yours, Merry Christmas! Whatever holiday you celebrate, may it be filled with love, laughter and peace. Share what you managed to capture this week. Please spread the comment love around. Thank you. *photo credit
Mom Hair
I am, not by a long shot, a fashion maven. Most days, I rock the t-shirt and jeans look.Some days, I’m lucky if I get to wash my face (showering is clearly not happening on a daily basis!). Up until recently, I haven’t cared how I look (seriously, I tried to water down mascara that…
Giving and Receiving
I know I will love it no matter what it is, because it will be from the child, her way of telling me, “I love you, Mama.”
Special Exposure Wednesday – Self Control
The greatest test to the boy’s self control right now: If he can pass this test, he can do anything, 🙂 Share what you managed to capture this week. Please spread the comment love around. Thank you.
The Hardest Word I’ve Ever Said
Seven years. Over a thousand hours at hospitals and specialist appointments. Countless interventions at home. And it turns out the most important word to help my daughter’s treatment is this: NO. No… we’re not doing a nineteenth round of medication adjustments. It’s time for hospitalization. No… I won’t take her home from the hospital and…
The Weary Woman..
The other day, I was overcome with emotion when I read what our friend Tammy said on her blog. (I’ll wait for you to come back…) This is such a sensitive topic. And one that is so often overlooked. We, regardless of situation, are still human. We have bad days. We have moments when we’re…
How Many Caseworkers Do You Have?
My calendar this time of the year gets a little cramped. We have a few birthdays (read that as all three kiddos), obviously Thanksgiving, Christmas, New Years (which also happens to be our anniversary). There’s only two annual events I attend for any given year…both this month – what AM I going to make for…
Treading Two Paths
I was so hoping this year to focus on building social scaffolding for the child at school. I’m dreaming of setting up a circle of friends who will know, understand, and advocate on her behalf as her differences become more apparent to her peers. I am just beginning the process of working out what that…