Previously, I’ve written 2 letters on my own blog. One to Lauren and one to Jillian. I’ve decided that I have some things to say to Cerebral Palsy. Dear CP, Can I call you that? I just think we should be on a first name basis by now. You invaded my life when my youngest…
Love Can Build a Bridge Between Your Heart and Mine
What is it about the wheelchair that attracts people? Some times it’s the looks but other times there are full blown conversations with people the randomly say things (not all bad!) My first outing with my son and his wheelchair was to a restuarant. I was meeting a friend for breakfast. We were eating and…
This week, I’m the whiner…
It’s true. And I hate, despise, and abhor being the whiner. I’m busy…like really busy. I home school my 11 year old. I take care of Jack and his daily routine of medications, tube feedings, and breathing treatments. I teach two night classes–one of which has a clinical component. For the next 2 weeks I…
We All Want the Same Things
I attended a gathering of parents with special needs children a couple of nights ago. There are a lot of things stirring in our community that bore discussion, but this phrase, spoken by one of the Dads there stuck in my head. We all want the same things… Our children may be different in various…
You Don’t Know That
Imparting parental wisdom to a child is difficult, but offering advice to those with special needs can be challenging. Using your life experiences, you advise them about possible mistakes. But in their world of absolutes, the response you get from them could be something like … YOU DON’T KNOW THAT.
Summer will happen, if I can get my paperwork done
With spring comes the cleaning. Moving through closets, changing out clothes, making the donation pile, giving your kiddos the spray bottle and a cloth to clean whatever windows they can reach (a great way entertain them too). But it’s also the time for more paperwork. For our family, this means we’re looking at summer programs,…
Staying Sane While Raising a Bipolar Child
She stomps out of the room, each firmly-planted step shaking the floor. Tear-stained, she plunges her face into the pillows on her bed, where she screams and cries. As she starts to calm down, I feel the adrenaline retreating into the places from which it flooded my body. Breathing, relaxing myself, I tend to her…
Cell To Person: A Cerebral Palsy Symposium
I mentioned briefly last week that I had the opportunity to attend a cerebral palsy symposium at Holland Bloorview. To say that it was completely overwhelming with information would be an understatement! I thought I could give you all a readers digest version here. If you need/want to read the detailed post, please head over…
Back to the Basics of Mothering..
Arizona’s scorching heat returned the end of this week, and because both my daughters’ have metabolic energy issues, and the school week was extra busy.. this made for very grumpy girls. Being hot makes us all a little grumpier, but for my girls when their bodies are truly out of fuel- it can reach a…
Social Inclusion for Children with Developmental Disabilities
This week, I received a notice, asking me if I would participate in a research study being done by a local university on the social inclusion of children with developmental disabilities. It states that the university is: looking for participants (parents & guardians) to complete an online study about the social inclusion of preschool and…