We tried 18 mg of Concerta (Methylphenidate). Then we upped it to 27 mg. After little success, we hesitantly moved up to 36 mg. We were surprised when it didn’t work very well. It has helped her sister immensely. That’s probably where we thought wrong. Since when are siblings ever on the same page on…
It’s Almost Election Day.
On my Facebook page, I am pretty to the point as to how I feel about Parkers local legislative representative. I think he stinks. In all sorts of flavors. He’s also the co-chair of Utah’s Health Human Services Committee. Which means he makes it a hobby to slash funding to Utah’s DSPD. Oh, he talks…
Call ME!
Yesterday, both of my kids (lucky me) had their yearly Well-Child checkups. 2 kids, 7 shots, buckets of tears… So, while I was sitting there praying for the floor to open up and suck me in (rather than lose my cool on the 11-year old who was crying sobbing inconsolable for absolutely no valid reason…BEFORE…
The Birds and The Bees
My two children who have the most significant disabilities are both 15 years old. They are teenagers, and hormones are coursing through their bodies. I have tried diligently to provide the education they need to understand their bodies, understand their urges, understand their options, and most importantly, keep themselves safe. But I don’t think I…
Special Exposure Wednesday.
Looking forward to Summer, Ivy sports her new swimmers, made with love by an amazing internet friend. It covers the port fully. It makes her feel safe and that makes her feel happy. Got something to share? Why don’t you join in this Special Exposure Wednesday. Please remember your comment love at each link you visit….
The looks that hurt
This weekend, an old friend came to visit. She lives out of state and we hadn’t seen each other in years. She brought her son, who’s 7, the same age as my little boy, Max. Except he and my five-year-old immediately jetted off to the basement to play on the Wii. I helped Max walk…
Victories
In some ways, we are still reeling from the illness and infection of months ago. In some ways, that time has changed the way I view things. Yesterday, I found a pressure sore on Esther-Faith’s ankle–possibly caused by her KAFOs. My sister cautioned that I should not overreact. And I found myself defending my concern……
TEFRA, Medicaid Waivers, and The Man
Dear Government of the State of _________, I recently had a visit at the Social Security office. See, I was there to get my son denied SSI, so we could apply for the Medicaid waiver. We waited in line for 2 and a half hours. With a feeding pump. When our name was called, the…
“Fair”ness
I often wonder why it is that some people are just normally respectful and accepting of people with disabilities, and others act as if they will ‘catch’ something if they get too close to a child in a wheelchair. My family and I visited the State Fair yesterday, and I saw many of both types…
Special Exposure Wednesday.
Sometimes all you need is love. Got something to share? Why don’t you join in this Special Exposure Wednesday. Please remember your comment love at each link you visit. Also posting at Three Ring Circus.