Well, the day is almost here… I wish I was more excited, but it’s not THAT kind of day that we’ve been waiting for. For about a month now, we’ve been waiting for the July the 19th and Monday it will finally be here. This is the day we go to meet a new specialist….
Tag Archive: special needs
The Beat Goes On
Is it just me, or is it odd the way your world just stops? The lab results, the diagnosis, and the hospitalizations … the realization that your perfect child is sick. The words taste bad in your mouth. Disease. Incurable. Rare. More questions than answers, more doubt than faith. You turn to the nearest window,…
Teachers
This is the time of year that many of us stress out about teachers gifts. Guess what? What your child’s teacher would like the most (they might not even realize it until you give it to them) is a heart-felt thank you note, written the old fashioned way (on note paper-not in email form) along…
Who do you trust to care for your child?
As it is, it’s difficult to leave my son with “just anyone” because his tracheostomy and g-tube care require training. But what happens when the person trained cannot be trusted? I would like to believe that because someone is licensed, trained and “seems” like a good fit that they can be trusted with my child’s life. I would like to believe that the nursing agency has hired and screened candidates thoroughly.
Last week I found out the hard way that that is just not always true.
The Secret Language of Special Needs
Recently it became obvious to me that special needs parents often speak to each other in code. I suppose it has always been around and is often used in medical support forums where everyone is speaking the same lingo. You know it. It’s the shorthand: Neuro, Pulmo, CHD, Mito, OT, PT & CI, just to…
“CONCERNED CITIZENS” ATTEMPT TO BLOCK PROJECT THAT WOULD HELP PROVIDE QUALITY OF LIFE FOR HANDICAPPED CHILD
I’ll admit, when I first read this I thought of the huge ham radio tower my Dad put up on his 5 acres of land. But then as you continue reading you discover that this is simply a small pole, that isn’t going to be blocking anyone’s view and will be on private property. Whoa….
Ready to Fight
I was informed last week that my son’s Insurance authorized his Speech Therapy. Good. But they decided to cut his current sessions in half. Bad. ROAR!! Several people tried to convince me that this was actually a good thing. They were happy that he was given “twice the amount than they usually approve,” so to…
Spread the Word to End the Word
I know I’m preaching to the choir here, but I think this campaign rocks. What about you? Have you taken the pledge? Because together we CAN make a difference. So don’t forget to ask your friends and family members to take the pledge too. Remind them the hurt this word causes. Ask them to join…
A Reader Question: Finger Chewing
I received an email from Angela who has a 5 year old cousin with Down syndrome. Angela refers to her cousin as ‘amazing and her whole world. ‘ Angela says that her cousin recently started chewing on his fingers to the point that they bleed. She’s wondering if anyone else has experienced this with one…
Helping Your Child Communicate: Voice4u
Parents of children with special needs know the heartache and frustration that often accompanies trying to provide their child with the services and care needed for their child to lead a healthy and productive life. Yumi Kubo is one example. Yumi Kubo, is the mother of a 15-year-old autistic son, and the founder and CEO…