For those of you who don’t know my story… yet (and for those who do, sorry, you’ll have to suck it up and read it again), My beautiful Boys are a matched pair who also happen to have an extra copy of the 21st chromosome. Yes, my amazing 5-year-old identical twins have Down syndrome. That…
Tag Archive: special needs
Who Needs Sleep?!?
Sleep is for the Weak. Yes. Someone knew what they were saying when they developed that title for a book. For 6 years, we didn’t sleep. I mean…Didn’t. Sleep. That’s part of the unofficial, official symptoms of Landau-Kleffner Syndrome (epilepsy). For us, it means putting J to sleep for 2 hours, he wakes, tosses and…
It’s Harder For Him
After the house quiets, order is restored and slumbers begin, reflection occurs. As the day replays, I think of what I could do differently, what meltdown triggers I missed, how I can be a better mom. Many times I find myself hitting full on the frustration of our life. The constraints placed upon us…how “we”…
4 Keys to More Time This Holiday Season
Holidays can be hectic. But nowhere more so than in families with special needs kids. I mean, seriously, how do we mix Burl Ives, Christmas cookies, and caroling with incontinence PT, psychiatric appointments, meds adjustments and therapeutic parenting?! Come take a peek and find out!
Boardmaker Studio: Review and GIVEAWAY!
Patrick Blair is the winner! There’s a FRESH spin on a Familiar Favorite in town! Boardmaker Studio! For more than 26 years, Mayer-Johnson has been committed to helping educators, speech-language pathologists, related professionals and parents make a connection with their students. Boardmaker uses PCS (Picture Communication Symbols) to help your child learn communication skills Parker’s…
It’s Almost Election Day.
On my Facebook page, I am pretty to the point as to how I feel about Parkers local legislative representative. I think he stinks. In all sorts of flavors. He’s also the co-chair of Utah’s Health Human Services Committee. Which means he makes it a hobby to slash funding to Utah’s DSPD. Oh, he talks…
Another Year
Yesterday, my son turned four. When my daughter was little, birthdays meant huge parties. Invitations went out, food was prepared, decorations were hung–all in the name of birthday. Forty friends and family showed up to eat and watch a little child open presents. Only usually, the kids would get to fussing and fighting and someone…
From The Files of WTH?!?
Imagine this: You are the mother of a son with special needs. In this case Down syndrome, but it could have been anything really. Your son has become enraged, cut his hand and is stomping around the house. You need help. So you call 911 and ask for help. But, you tell the 911 operator,…
What are you reading?
I have been updating my book recommendations on my website, and would love your input. What are you reading? I’d love suggestions from the “Special Needs” Category and from the “Reading for fun” Category which for special needs moms is about 2 minutes before we fall asleep at night! Here are a few of my…
Every month….or when the time is right.
Each month it goes something like this: Hmmm….I need to get Parker’s montly bloodwork drawn. All one zillion and one bottles pulled for the zillion and two different tests. The liver function panel. The Thyroid. The CBC The tests to see if the statin Parker is on is breaking down his muscle mass. But the…