She is their best friend. I see it in their faces, hear it in their play, watch it in the way they fight over the smallest piece of junk, determined that their need to treasure this particular item is deeper than the other. Then, just as easily, one gives in. One notices the tears of…
Tag Archive: special needs
I Have A Dream!
I know, I’m late to the party weighig in on the legacy that is Martin Luther King Jr. But I post on Saturdays and Martin Luther King Jr. Day was Monday. Thing is, it really REALLY hit me on Monday just how thankful I am to this remarkable man who gave his life fighting for the simple God-given…
Doing Business with Accepting Individuals
A long time ago, long before kids, my husband (aka: Sarge) and I decided that we only wanted to do business with good people; Folks who were honest and hard-working and who treated us right… versus those establishments that may have a slightly lower price tag but their store-side manner just stunk (cleaned up for…
How Do You Discover What Ails?
At the very moment I write this, I have a headache. I’m not sure I ever really felt it coming, so much as finally acknowledged that it’s here. I recognized it. Acknowledged it. I blurted out to C, “I have a headache”. I just took some Tylenol. Then it occurred to me just how easy…
Down Syndrome Statistics Turned Upside Down
I love hearing factoids and stats that raise an eyebrow and make me think a little deeper about things I thought I knew. Information presented in a way meant to shock but in the end, I find, actually gives me hope when turned inside out or upside down. Here are a few stats and how I choose…
Underestimating Our Children’s Awareness?
Do we underestimate our kids or are we spot on? This question has been floating around my head; though it’s not the first time I’ve had floating thoughts, nor the first time this one has made its rounds, it is at the forefront today. After our wedding fiasco (said lovingly and lightly), we had theories…
Are Perseverations A Deeper Thought Needing A Better Answer?
I’ve learned not to look too deeply into what J’s thinking. Beyond what his needs are, what may cause or did cause a meltdown and how to keep him entertained and growing without meltdowns is about as far as I’ve gone. We’ve been in such a similar space with similar likes and dislikes for so…
Filling Their Hearts With The Lights Of The Season
One of my favorite pieces of the holiday season is the lights and the sparkle, warmth and wonder they bring. I try to remember the awe I had as a child while watching my children’s eyes widen as we pass by in the early stages of the evenings. Since we aren’t usually out late, I’ve…
I Hope We Can Stop EEGs Sometime Soon
Today we’re checking into Children’s Hospital for J’s biannual EEG. We’ve been anticipating this for…well, for about 6 months, since his last EEG so we can get a better grasp of what’s going on for him. His last EEG, July 21, 2010 showed him still having 50% of his REM in spike and wave activity,…
Home Is Where The Jello Is
The two sides of J seem to be school J and home J. In school, J has one-on-one attention…well, mostly, but that’s another story. He has a strict schedule he follows, every minute of the day essentially accounted for. Though there’s a definitive concern for his growth and successes in academic and daily living goals,…