Tag Archive: special needs

“Expect to do a lot of mourning…..”

Today’s post is by Beck from Frog and Toad Are Still Friends My youngest child was diagnosed with Celiac Disease at nearly 15 months old. It was a tremendous relief when she was diagnosed, because she had been so sick for so much of her short life and the improvement in her health was almost…

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Just because you THINK you have your I’s dotted and your T’s crossed doesn’t mean you actually DO

Here I go with the Twitter again…. Last week, on Wednesday, I was yet again on Twitter when my phone rang. Now, while that isn’t unusual, the Caller ID was. Spiff’s new high school. Um, okay… So I answer it and begin talking to someone who tells me that we need to discuss Spiff’s schedule….

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The Apple May Not Fall Far From the Tree

So I went to this little thing called BlogHer this past weekend and I had a great time. No, really, I did. BUT… I noticed some things about me while I was there. I talk too much. Like as in OVERSHARE. Like I discuss something until it can’t be discussed no more. And then I…

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To Tell or Not to Tell, That is the Question…

Do I, or don’t I? Do I tell them? Or do I just wait for the inevitable phone call, or note home? One of the many things I struggle with when it comes to Spiff is whether or not to tell you about his Autism. And by you I mean anyone. Teachers, Camp Staff, Friends,…

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Celebrating Joys Shared: A Blue Bunny Ice Cream Photo Contest

Well, it looks as though Mr. Linky has jumped ship yet again. sigh. So just add your link in the comments section below and we’ll add them to Mr. Linky when he’s back up. I think if you could ask a parent of a child with special needs what they would like others to know…

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Don’t Hate Me Because My Floors Are Spotless

Comments are now closed! Thanks everyone! Living with a medically fragile kid who spends a vast majority of his time on the floor makes the cleanliness of those floors a high priority. Very high. To the point where I’ve been called …..a Clean Freak…..OCD…..and The Mad Cleaner. All in one sentence. Hey. You have your…

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Why I am dreading the tracheostomy

A couple of days ago, we had our followup with our ENT. Hannah has been having some breathing issues lately, and I had brought them up to her since our pediatrician and occupational therapist felt that she had airway issues. The ENT did a laryngoscopy and found that Hannah had vocal cord paralysis. She would…

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Planting the “special needs” seeds

Because Hannah’s disease progression is slower than was originally expected (thank goodness!), we have been able to slowly plant the seeds of Hannah’s illness to Ethan (8) and Abigail (5).  We made a very strong point never to say she is “sick” but that she has a “disease.” We don’t want them to connect being…

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Two Down, One More to Go

He did it! and now, we enjoy the summer! Shash is ready to start her summer, beginning with sleeping in on a weekday! Click over to Diary of a Crazed Mommy to read more about her life and her amazing family.

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Yes, I DO raise my kids differently

Out of the hundreds of wonderful and supportive comments and emails I receive, every once in a great while I apparently piss someone off with something I share. Instead of writing back to this one person, I decided to share my response here in case anyone else felt the same way.  When I mentioned a…

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