That’s my mantra. My concrete brain wants to connect all the dots to my daughters. I have a control-freak hiding deep inside that whispers, if you know why, then you’ll know how to make her all better. Then I open the fridge to make breakfast and see this: My kids don’t make any more sense…
Monthly Archives: September 2009
Those flashes of sadness
I was at a local event over the weekend and spotted Ethan, a kid who’s the same age as Max, six. They were born days apart. Back when they were babies, his mom and I chipped in to hire an expert to teach us baby massage. She came to our house and we placed the babies on the…
Childhood Cancer Awareness Month
Did you know that this month is Childhood Cancer Awareness month? Kids all over the world are suffering from cancer. Hospital floors are filled with children with bald heads, going through chemotherapy, bone marrow transplants, and surgeries as they literally fight for their lives. Before 2007, I had no idea. I knew it existed of…
Love and Praise for Parents of Medically Fragile Children
This is the message I found on my answering machine Monday morning. “Hi mom, it’s Andy. Just wanted you to know I have the swine flu, but don’t worry.” This was the same day that I learned that a student at Cornell had died from the H1N1 virus. I called Andy, who is a senior…
Should You or Shouldn’t You?
My children and I were shopping at one of the big box electronic stores this weekend when I saw a lovely family – Mom, Dad, and two teenaged children. One of the children had Down Syndrome. What gave me pause was that Mom was walking through the store holding the hand of the teenager with…
Support Group
I have a great support system in my life. Really, we do. It is made up of family, good friends, best friends, teachers, neighbors, co-workers and well, you. Thank you to those who see my son in public and don’t judge his mannerisms and then in turn judge us. Thank you to family who loves…
Special Exposure Wednesday
Spring is here. There is nothing better than standing under an umbrella in a sun shower. It’s the simple pleasures. Got a photo to share? Why don’t you join in this Special Exposure Wednesday. Please remember your comment love at each link you visit. Also blogging at Three Ring Circus
Now both of my kids are in OT
Having two kids means four times more work than one. When both kids are in therapy, everything is four times harder than that. We started the two-in-occupational-therapy schedule when school got out. It looked to be a short-term thing, she just needed help with her handwriting. That was wishful thinking sprinkled with a dash of…
To have a third child or not?
My sister’s due date is next week. My good friend Lyla is having a baby next month. I am so, so excited for both of them. I am also a little melancholy. Anytime anyone close to me is having their first kid, I can’t help but flash back to my pregnancy with Max. When I…
Risk
Some might say that it is risky in general to have a three-year-old walk down the aisle right before the bride anyway. But a strong-willed three-year-old who uses KAFOs and a walker? Definitely ups the “risk-factor.” But that didn’t matter to Jess. She wanted Esther-Faith. Esther-Faith was MORE than happy to oblige. In her own,…