***This is something that has come up again this week! While you’re reading and pondering, we’ll be at the doctor…again! Until next week… For almost 5 years, I’ve done a whole lot of worrying. I worry about germs. I worry about sleep schedules. I worry about doctor’s appointments. I worry about the future….
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Author Archives: Heather P
Heather is a mom of two, wife, and nurse educator doing what she can to save the day! She lives in Orlando where she is routinely spotted driving while singing ABBA--all on a mission to advocate and educate!
The Bubble Bursts…
Written on July 27, 2012 by Heather P
Sometimes, I lose my words. Like someone popped my beautiful bubble that I worked so hard to get right. Or I feel like the sky is closing in on me. Actually, I feel like I’m the kid with the black cloud that only rains on me. (Pity party, table for 1?) So many times, on…
Perfectly Imperfect
Written on July 20, 2012 by Heather P
That’s what I am. I don’t know about you, but sometimes I get bone tired. Tired beyond tired. Tired to the point where all I crave is sleep, and yet it eludes me. It is in these moments of sheer exhaustion that I sometimes have the most clarity. It makes no sense to me,…
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Written on July 13, 2012 by Heather P
Jack met with the developmental psychologist on Tuesday for a few hours. We have been noticing some hard-core aggression along with some other really disturbing “new habits” that have come up in the past few months (for example, he’s taken to not sleeping again, and he’s picked all the nails off his fingers…
Be Prepared….
Written on June 29, 2012 by Heather P
Living in Florida, I know a bit about natural disasters. Like when, in 2005, 3 hurricanes hit us in 6 weeks. I got a new roof twice. Back then, I only had the Girl Child, who was 5. She was self-sufficient, opinionated, and stubborn–but she knew when Momma said, “Get in the bathroom and cover…
Fatherhood, redefined…
Written on June 15, 2012 by Heather P
My life changed drastically the day we adopted Jack. I just didn’t know how much it was changed. We struggled to have our oldest child. She was born early, but healthy. Shortly after her birth, I had a large lump removed from my breast. 2 months after that, I had a complete hysterectomy. We knew…
Moms Gone Mad!
Written on June 1, 2012 by Heather P
I have tried… When Jack was taking therapy a million hours a week, I would sit in the waiting room and take in the “sights” and sounds around me (seriously, people, leggings are NOT pants!). So many times my heart broke when I would hear another parent, under the guise of “advocacy,” just pick apart…
Special Needs Sports
Written on May 18, 2012 by Heather P
When Jack was first diagnosed, and we still felt like the world was ending, my husband was devastated. Not because of the diagnosis, but because of what Jack may not ever be able to do—play football, or baseball, or any of those “guy” things. Personally, I believe that deep down, there’s this innate thing that…
What a Special Needs Mom wants for Mother’s Day
Written on May 11, 2012 by Heather P
This week, I’ve read lots of blog posts and memes about Mother’s Day. Some of them are pretty dead on accurate, and others hurt my heart. Lots of them are about what mother’s really want for Mother’s Day—things like for children to close the doors, pick up socks, and so on. So as I was…
How to Save a Life
Written on May 4, 2012 by Heather P
“And I would have stayed up with you all night…” (The Fray) Funny…my nights are filled with constant coughing. Wet washcloths to the forehead. Pulse oximetry. Puking of mucus. Pedialyte. Medication. Pillows. My little dude is not doing so hot. His lungs aren’t doing their job very well. There’s Lysol, medications, inhalers, nebulizers,…
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