We, lovingly, call Jack “The Beast” sometimes. We don’t mean it in a derogatory way at all. Just in a way that we all know is true— he’s kinda Beastly (he’s a growler…loves to growl all the time when we’re out. Growls at old ladies, at kids, at dogs…). Sometimes he’s “Beastly” or “My Beasty…
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Author Archives: Heather P
Heather is a mom of two, wife, and nurse educator doing what she can to save the day! She lives in Orlando where she is routinely spotted driving while singing ABBA--all on a mission to advocate and educate!
Faith and Hope and Love.
Written on April 20, 2012 by Heather P
The thing about faith is that…it’s not transient. You either have it or you don’t. You don’t have to believe in the God I believe in to have faith either. You can have faith in lots of things–doctors, teachers, friends. To have faith, you have to trust. A lot. Believe. A lot. So where does…
As They Grow…
Written on April 6, 2012 by Heather P
I am the first to admit that March 7, 2007, was one of the toughest days of my life. I sat, holding the baby that only a week prior was declared “mine” in a court of law, while a neurologist told me my son had a diagnosis that changed his life forever. I felt numb….
Special Schools
Written on March 30, 2012 by Heather P
This week has been one of those weeks where my emotions have gone from elation to fear to peace—and then back again! It is time for Jack to head to school. In the past, I was determined that the only way he was going to do school was with me by his side (meaning: home…
A Lesson in “Nurse”
Written on March 23, 2012 by Heather P
***I’m re-posting today because, ironically, I am at a mandatory class for my license!*** I am a red-blooded American Registered Nurse. I earned the right to call myself a nurse when I passed the NCLEX (which is a fancy name for the worst test you will ever take in your entire life) and…
Weddings (and other such events)
Written on March 16, 2012 by Heather P
Tomorrow my brother is getting married. In a quiet, small gathering. On a boat. At Disney World. Now, while most people think this sounds romantic and lovely, I am a nervous wreck. My brother loves my son no matter what; however, if he decides to melt down or scream or narrate the entire event,…
Random Thoughts on a Funky Friday…
Written on March 9, 2012 by Heather P
* I had a job interview yesterday. It went well. I think… * I’m thinking of doing a few interviews (pseudo-interviews?) with some SN moms I know…so that we can broaden our worlds a bit. Whatcha think? * Tomorrow I’m going to a ZumbaFest with my mother. If I die, I will miss you all…
The Working Special Needs Mom…
Written on February 24, 2012 by Heather P
So, how does one do it? Work and be Mom of the Medically Fragile? I need to know. I have a job interview. For a real, big girl job. In my field. At a large hospital. In a position that I, a few years ago, could have only dreamed about. I don’t really want to…
It’s POTTY TIME!!!!
Written on February 17, 2012 by Heather P
A few years ago, I fell in love with Signing Time. Jack was struggling to do much more than scream and I was increasingly frustrated. In a last ditch effort, I bought some DVDs and prayed that he would communicate with me. Slowly, he began to sign (things like more and done) and I felt…
in Asperger's Syndrome, Autism Spectrum, Cerebral Palsy, Communication, Contests, Day In And Day Out, Developmentally Delayed, Down Syndrome, Education, Family Life, Giveaway, PDD, Raising Awareness, Rare Diseases, Reviews, Self Care, Sensory Processing Dysfunction, Skill Development, Spina Bifida, Stuff We Love, Therapy
Love is…
Written on February 10, 2012 by Heather P
Love is… Love is… a choice. Love is… knowing that without them, life would be empty and cold. Love is… sharing tears. Love is…worth fighting for. Love is…a knowing glance across a room. Love is… hurting for someone else. Love is… a familiar smell. Love is… something that is so easily tossed aside when…
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