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Category Archives: Advocacy
Will you Vote?
I don’t know about you, but I’m about sick of the emails, phone calls, and television ads telling me who to vote for. “Vote for Al—he’s better than Sandy!” “Don’t vote for Sandy, she has a history of not paying her taxes, and she eats small children for lunch!” However, as much as I want…
The Birds and The Bees
My two children who have the most significant disabilities are both 15 years old. They are teenagers, and hormones are coursing through their bodies. I have tried diligently to provide the education they need to understand their bodies, understand their urges, understand their options, and most importantly, keep themselves safe. But I don’t think I…
Victories
In some ways, we are still reeling from the illness and infection of months ago. In some ways, that time has changed the way I view things. Yesterday, I found a pressure sore on Esther-Faith’s ankle–possibly caused by her KAFOs. My sister cautioned that I should not overreact. And I found myself defending my concern……
TEFRA, Medicaid Waivers, and The Man
Dear Government of the State of _________, I recently had a visit at the Social Security office. See, I was there to get my son denied SSI, so we could apply for the Medicaid waiver. We waited in line for 2 and a half hours. With a feeding pump. When our name was called, the…
Do Unto Others
A few weeks ago, my cousin posted something on Facebook that had been making the rounds. It was a simple note from a doctor (real? fake?) basically stating that this doctor was against health care reform because the problem was not health care issues but the fact that Medicaid is a diseased program, that everyone…
Next Time, Ask
Last Saturday I attended something billed as a ‘Autumn Institute’ for families of children who are deaf or hearing impaired. This ‘institute’ was held from 9am to 4pm at one of our local parks and was touted to have consultants from our state Department of Education, our state’s deafblind project, the Department of Rehabilitative Services,…
Spina Bifida Awareness Month
October is Spina Bifida Awareness month… We kicked the month off by going to our local association’s Walk, Run, and Roll. I think I would love to visit every race held all over country someday. So many of our friends who were first-timers at the race commented on what a family atmosphere it was. I…
The Line
Let me describe for you a scenario: You are sitting at therapy. While sitting on your plastic chair waiting for your child to finish therapy, That Mom catches your eye. That Mom. The One. I KNOW you know her. She’s the one who has taken over half of the waiting room. She has her book…
Ignorance At Its Best
I’m having a particularly difficult week, and decided to share a blog post from my archive. I promise I will get my act together in time for next week’s post! ******************************* My buddy, Esbee, over at the Life in Forsyth blog, emailed me to let me know about one of her blog posts that she…